I have had different health issues. In 2015 I had an episode where my face swelled way up, luckily without affecting my airway. A couple of days after that, may hair began falling out until half of it was gone. I was “diagnosed” with idiopathic angioedema. When I asked if that would cause the hair loss, I was told that it wouldn’t, but they couldn’t provide an explanation for that. I have had episodes of tennis elbow to the point that I’ve needed surgery on both elbows. I’ve had surgery on both feet for arthritis. I have scarring in my lungs, which has been called bronchiectasis. A couple of weeks ago, after a vacation in the sun, a lymph node in my neck swelled up to the size of a golf ball, with no further symptoms. I’ve been getting cysts and bacterial infections. My eyes swell up sometimes and they are dry. I’m concerned that I may have lupus, since I’ve had so many medical issues that haven’t been connected. When I finally got in to see my doctor for the swollen lymph node and asked my doctor for blood work to check my immune function, she said that I had that testing done in 2015, and it was fine, so I didn’t need it again. It’s very possible that I don’t have lupus; however, I am wondering if anyone else might have had all these issues prior to their diagnosis. I had a very faint rash across the bridge of my nose in 2015, but that’s the only time I had that.
I also was referred to a rheumatologist in 2015 after an allergist was unable to determine why I had angioedema, and the rheumatologist ordered blood work with an ANA test, which came back negative. I was not scheduled for any follow up after the negative blood test. I don’t know if a person can have lupus if an ANA blood test has come back as negative.
I was recently signed on with a different family doctor after mine retired. Since I was signed up with this new doctor a year ago, I have actually not been able to book an appointment with her. Anyone from northern Ontario will be familiar with this issue. I have had to see on-call doctors, nurse practitioners or physician’s assistants in order to get in to see anyone when I’m actually having any symptoms. Although the have electronic medical records, there is no continuity of care, and I have had to tell them that I’m allergic to certain medications when they’ve tried to prescribe them to me, so I don’t think they actually take the time to read the records and put symptoms together. I’m feeling frustrated and like there must be something more going on with me, since I’m having all these different issues.
Thanks for letting me vent about this!