Who is the captain of your lupus treatment team?

I actually have three questions.

  1. What is the medical specialty of the physician who captains your lupus treatment team?
  2. Do you take an active role in constructing your lupus treatment plan?
  3. Does your physician use a patient centered communication style?

It is widely recognized that a condition as complex as lupus requires a multidisciplinary team based approach in order for treatment to be successful.

The team approach is the most successful way to manage lupus. http://www.lupus.org/webmodules/webarticlesnet/templates/new_learnparents.aspx?articleid=4148&zoneid=530

A team approach in treating lupus is often warranted due to the number of organ systems involved.http://www.cdc.gov/arthritis/basics/lupus.htm

The Lupus Initiative is asking who should be the captain of the team. The Lupus Initiative points out that while the primary care physician usually fills this role, they may not have the training required to do this for their lupus patients.

http://www.thelupusinitiative.org/content/team-based-medical-care-required-who-should-captain-ship

What is the medical specialty of the physician who captains your lupus treatment team?

The lupus initiative also discusses research which suggests that informed lupus patients who take an active role in their treatment accrue less organ damage than those who do not.

http://www.thelupusinitiative.org/content/team-based-medical-care-required-who-should-captain-ship

Do you take an active role in your lupus treatment?

They also strongly suggest that health outcomes for patients with lupus may be better when physicians use a patient centered communication style.

Trust in physicians can be improved by using a patient-centered approach, being sensitive to patient concerns, and providing adequate clinical information.12 Patients appear to be more willing to disclose concerns when physicians use a patient-centered communication style.

Does the physician who captains your lupus treatment team use a patient centered communication style?