Quantcast

Life With Lupus

Welcome, Q22


#1

@Q22

Welcome to Living With Ben’s Friends! My name is Christie, and I’m an intern here with Ben’s Friends. Getting diagnosed is always better than not knowing what you are dealing with for most people, so I’m glad we got there already! I’m glad we found you at the beginning of your journey. Speaking of eating… ME TOO. What’s your favourite food? Mine is anything that’s sweet - cakes, desserts, fruits… I’m drooling already. Can’t wait to hear back from you!

With love,

Christie.


#2

Hi Christie!
Thanks for bc replying…I love all food lol …mac and cheese…anything that has to do with POTATOES :grin:


#3

HELLO CHRISTIE, :sunny: I AM VERY SICK DUE TO THE HEAT IN CALIFORNIA.
I JUST WENT FROM THE CAR INTO A BLDG. I AM SO SICK TODAY.:frowning:
I HAD TO GO OUT, YESTERDAY NO CHOICE OR NO MEDS!!.(((:((
NOW, I AM PAYING FOR IT. wow! I AM IN A HUGE FLARE UP!! THANK GOD, THE STATE OF CALIFORNIA GAVE ME A STATE FUNDED CAREGIVER. I AM BLESSED!!:):slight_smile: A NEIGHBOR RECOMMENDED SOMEONE, TO ME------
AND SHE HAS LUPUS ALSO. I DO NOT KNOW HER VERY WELL. THE LUPUS TOLD ME EVERYTHING ABOUT HER, AND SHE KNEW MY LUPUS IS AT A 4TH STAGE :(:(!!. (which is very bad and can cause organ problems) IF I DID NOT KNOW :):):)!!! THANK GOD FOR CAREGIVERS!!!YIPPIE yeah!! I TRY TO GET WHATEVER I NEED BY TELLING MY CAREGIVER. HE IS GOD SENT!!THE AMOUNT IS MINIMUM AND THEY I AM QUALIFIED FOR FREE SHIPPING… LESS TIME IN THE SUN, AND HEAT.(NO KIDDING) BUT, IF YOU HAVE NO FAMILY AND I YOU NEED SOMETHING AFTER THE NORMAL HOURS OF BUSINESS— GOD HELP YOU!!! ALWAYS TRYING TO STAY COOL MM AKA MICKEY
PS: CHRISTIE, I AM WORSE THAN YOU—WHEN MY CAREGIVER LEAVES I TAKE OUT MY STASH OF GOODIES.


#4

Since your new to lupus I suggest you really read up on lupus cause you should no be depending on your caregiver cause he’s not a dr the best thing he can say is stay off your feet


#5

And the best advice that I can give you is listen to your body. If your not feeling up to get some rest your peeps might not understand but that’s when you really have to breakdown what lupus really do to your body hopefully they will understand. But I you choose not to listen to your body then you will pay for it