So, I suppose it's finally time for me to vent.. I just wasn't sure where to turn tonight.. then I remember lwl. Thank goodness..
I guess it'd be hard(er)? to understand without some background, so here it goes..
I've always been one to sleep lots and lots (like 12+ hours a night) ever since I was in 8th grade.. (I'm 20 now). My parents just thought it was a 'teenage stage' and that I'd eventually get over it.. I was also always complaining about some type of aches and pains and went to the doctor frequently, however everything always came back fine.. I'd had 'the itchies' or so I called it since I was about 6 or 7, usually starting in my hands or feet, then going to the other, and sometimes spreading throughout my body.. I finally had a blood test done and the doctors told me that I had high histamine levels, and that I should just take Zyrtec (an allergy and anti-histamine) once a day.. This took care of my itchies for quite a while.. I also had developed (not sure if develop is the correct word here..) dysfunctional SI joints, which are in my lower back.. and have had extreme pain with that.. doctors had sent me to physical therapy and even had heated ultrasound massages done, none of which helped at all.. I hate shots, but the pain was so bad at one point, I even let me doctor give me a cortisone shot, which (of course) didn't help either..
Fast forward to about a month ago, I realized that the anti-histamine wasn't really doing it's job anymore and I was sleeping even more(about 14 hours a night), and feeling exhausted about 6 hours after waking up. I then realized that I hadn't been in to the doctor in a while, and had just moved in with my Grandma to be closer to school in Fall.. I made an appointment with the doctor that actually delivered me when I was a baby (aww) and two weeks later, finally got in.. I had quite a list of things for her to look at; my sleeping, my lack of energy, and some strange rashes I had begun to get on my legs.. She briefly mentioned lupus, and I thought nothing about it. Like most I had "heard of it" but didn't know much about it.. She did some blood work, then called me to tell me that my ANA came back really high.. and that I needed to be sent to a Rheumatologist..
Here I am now.. about 2 1/2 weeks after getting back the abnormal results, and I still havent seen the rheumatologist.. My "symptoms" have gotten worse.. I've had extreme wrist/hand pain, to the point where I couldn't drive or even cut my own food at dinner time.. Recently I've had what I believe to be kidney pain, and as of the last few days really sore ankles.. Since my wrists and arms have been hurting, I had to call into work for a week straight, because I was working in the bakery section of a grocery store, and had to work mainly with my hands/arms.. I had doctors excuses and even sat down with the head of our store to let her know what was going on.. I got the call on Friday that they "had to" let me go..
So right now I'm just in a super stressful place.. I had just gotten a good job, moved in with my grandma, and was just beginning to become financially stable again.. I have some debt that I hadn't been paying on for a while, and had just begun to make regular payments again.. So here I sit, with no answers.. a "preliminary diagnosis" and extreme pain.. I'm just so frustrated and find myself crying out of no where..
I guess there really wasn't a point to this post, except for me to finally get out there how I've been feeling.. This is such a wonderful community and I am so happy to be a part of it.. Thank you so much for allowing me to vent.. sorry for the long post..