Oh Janelle I’m really concerned! You’ll have to go through withdrawal! If you can make another appt with GP, talk to her about methadone, because it helps with withdrawal but also with the pain. Ask her what other meds she can offer for withdrawal. That’s insane to not get them for lupus. Find another Dr. Lupus is more painful than most cancers, and painful for decades! Our quality of life is lower than most cancer patients due to that pain. If no help from Dr. regarding withdrawal, you may have to go to the ER and ask them what they have to help for pain until you can find another Dr. or even ask which GPs could help you, considering you are immobile and will lose job and become immobile and lose so much without help with pain. If you and your pharmacist know each other and he/she knows that you have been a compliant patient, you can often ask to talk to them privately for a minute and ask if they know of a Dr. who could help, and explain all that you could lose without pain control.
Also ask if your Dr. or the pain specialist knows about low dose naltrexone (LDN), it helps a lot of people. You are the first person I’ve met who said they were helped by Kratom. I have talked to many who tried it, but none that it helped. That’s cool!
In the old version of this site (Ben’s friends) we were able to do so much more than now. We could send private messages to each other and befriend people, it was a lot like FB, we had our own page. I wish we could do that here, because I’d like to keep in touch as you go through this. As it is, I can’t even share my email address with you or where to find me on Facebook, because then everyone would see it. So I have not used this site as much as when it was in the old format. If you know how these things can be done here, let me know!
We have a lot in common, they think I was born with lupus, I was born with some bizarre inflammation issues, but I didn’t get diagnosed until I was 21. Too young to be in debilitating pain? I just keep praying that people will go to their gov’t leaders and complain and show what they are suffering and I’m sure there will be more deaths from suicide due to pain than ever died from opiate overdoses. THIS NEW LAW NEEDS TO BE CHANGED! I saw a cool video about why the war on drugs won’t be won the way the US is doing it. It says that denying people of any item, creates MORE of a demand and more expense for it. Other countries have made such great success in this area, and with helping people in pain.
If anyone is reading this, is there any way to befriend people here or send private messages or emailsÉ