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Life With Lupus

Neurologist specializing in autoimmune disorders


#1

I am trying to find a neurologist in the Boston area who specializes in autoimmune disorders, specifically lupus. My headaches are daily now - can't remember the last pain free day. Any referrals?


#2

Is the Hospital for Special Surgery nearby enough to you- they are world leaders in the treatment of lupus? I had this too and was seen by a neurologist but he didn't specialize in just lupus - he was able to fix me up - have you had a neuro consult yet


#3

Thanks so much for this recommendation. I am not familiar with this hospital but would like to research more about it. How did the doctor there "fix you up"? I have a neurologist here in Boston but I don't think she has many lupus patients. Glad to know that you found relief but also comforting to know that I am not the only one!!


#4

Neurologists are educated in autoimmune diseases as well so they are not idiots and migraine syndromes are a mainstay for neurologists too I was fixed with medical therapy - using the right combinations of drugs


#5

Hi Daisy
My sister is a nurse and she lives in Everett. i WILL call her tomorrow and see if she knows of any neurologist. I ive in Hudson NH and neuroogist is the only specialist I don't have, yet. HAHA This is of course I remember. HAHA

Cindy


#6

Where is the Hospital for Special Surgery???

Cindy


#7

New York City but is world known It also has a great website on lupus with lots of info


#8

Hi Poobie:

Can you tell me the name of the dr in NYC. I don't need anyone now but , Who knows when or if I will.

Cindy


#9

Seems when ever I come here no one seems to wanna talk or they just have me on ignore..I dont believe Ive done any thing wrong but I will be sure to remove myself from your list soon........Theres people in chat also that dont even speak........Thank you and Im sorry if I offended any or what ever I may have done wrong.........


#10

Dear Little old me,

The chat room doesn't get as much use as most of would like. I can assure you it is in no way your fault.

Many times I to remind myself about time differences and the fact that as this site reaches people, literally, from many different places on the planet.

However, I speak to many people through PM and am sending you a friend request so that we can talk whenever you feel the need :). Also, know that weekends and holidays are a time when many members have family at home and for those that still work, it's a time to recharge what little energy they have lost during a work week.

I am certain that you have don't nothing wrong, just the way that the site is sit up. I look forward to speaking with you soon.

Biggest hugs,

DeAnne


#11

I know this thread has been inactive for a while, but Dr. Bernstein at BIDMC's headache center (it's in Brookline) is phenomenal. I was treated like a human being with a genuine illness -- something that's been hard for me to come by after being misdiagnosed as having a psychiatric cause for my symptoms (Converison Disorder, essentially code for hysteria) and probably misdiagnosed with fibromyalgia (first rheum I saw said with 100% confidence that it wans't fibro, 2nd diagnosed me with fibro despite that and is one of the rudest, condescending, egotistical physicians I have ever met, she was horrible...) SO, the fact that Dr. Bernstein sat with me and treated me as a patient with integrity in the face of my records just goes to show how she really looks at the patient as a person and not a nutcase or set of lab tests that just needs to be rushed through the office.