Well I'm headed into the long-term disability . I haven't worked for 13 months I have several of the Lupus markers in my blood test, but not all of them, whatever that means. That's kind of how my doctors explain it. I have breakouts with butterfly rashes lung pain, headaches, back pains bodyaches
tremors and shaking in my hands and I have lost 50 pounds in the last 10 months. A couple of my nieces have Lupus so it runs in the family. Yet my rheumatologist will not officially diagnose it as Lupus , which will cause a struggle for me when I apply for permanent disability. The doctor has me on 15 mg of prednisone daily Plaquenil.
20 mg of doxepin. Dapsone which I recently had to stop taking due to the bad liver test. So they have me on all of the medications to treat Lupus but they won't come across with the official diagnosis. I'm not sure what they're waiting for. But they are dragging it on, which may cause a struggle for me to be approved The longer I have to wait . I will have to find ways to survive financially, which is very stressful.. But I am too sick to work any longer. My lung pain has become severe , and I now have moderate asthma they have started treating that with QVAR 80 mg inhaler along with the prednisone. The stack of paperwork and research information I have to submit is challenging and depressing for me. Because it's hard to think and do all of that paperwork. What a struggle.
Does anyone have any suggestions or tips on how to make the long-term disability go smoothly