After informing me that I was far and away the worst of his patients regarding lung function, my pulmonary doctor - now as frustrated as I concerning the future approach to treating my interstitial lung disease - informed me that it might be time to simply fight the symptoms rather than seek a cure. I have only 30 percent of my lung capacity remaining due to the ravaging impact of the rare interstitial lung disease, despite numerous attempts by some caring doctors to find ways to battle the crippling problem.
Various chemo drugs failed to show any improvement in my condition. I also suffer from lupus, which they say caused the interstitial lung disease.
Now my doctors, including those in Vanderbilt University's palliative care department (hope I spelled that correctly), have encouraged me to up prednisone from 15MG to 30 MG to hopefully help with difficulty of breathing. They also have me taking morphine tablets twice daily and oxycodone (partly for
back pain caused by large volumes of prednisone), which they say can sometimes improve the breathing.
I hope this works because this is getting old in a hurry.
Hope everyone else is seeing improvement with whatever ails them.