Hi everyone. I have been lurking for about 7 months or so, now. Late last year I was told I had a positive ANA, plus some other markers that point pretty heavily towards Lupus, or some sort of autoimmune disorder. Once that test came back, my PCP pretty much washed her hands of it and told me she could not answer my questions--a rheumy would. So I did what most rational people do when told they need further testing-- I ignored it...( being sarcastic here... : )
Anyway, though my symptoms were mild...(hair loss being the major one).. I managed to tell myself for 7 months that my symptoms were related to OTHER things. Age, hormones, stress. The only reason I decided to even go back to the doctor now is because my hair keeps shedding.
I go to see a Rheumy in July...(after rescheduling that appt. 8 times or so?) I went and got some labs done a couple of weeks ago.. My CBC blood work has always been hinky--WBC low, usually, for the better part of the past 8 years. Low WBC, high lymphs, low neuts has been my "normal" for a long time..(this according to my doctor--she always told me there was nothing to worry about, since I was not feeling sick. Some people just have low/high levels...) So, while this always was in the back of my mind, I tried not to worry about it. OH...and I was negative on the ANA test 4 years ago.
I know now, from my manic internet searches...(both a blessing AND a curse) that when an autoimmune disease is forming, blood counts can be off--though the markers themselves don't show up yet. This is my understanding at least.
Well...this last blood test I got the call that my PCP wants me to see a hematologist. Apparently not only are my lymphs high, they are showing "atypical"... First time that has happened, is what I am told. Though in looking over my lab work over the past 8 years, this recent set is the only one that even shows a category for "atypical".... I don't know if this is a specific test or if this reading only shows up IF the lymphs are atypical?
I guess people with Autoimmune issues can have abnormal blood works, since our bodies are under attack. My doctor says it could be this, but she also is worried that it could by Lymphoma. So, I went from complete denial to.."It feel like it just got REAL"...in the span of less than a week.
Thanks for reading, and for any input anyone may have? Hope you all are having nice days... : )