Where I live there are no rheumatologist at all...so nurses here do not know any. Not even the doctors here no any really. I agree about using RN's since i have few in my family lol! or anyone that works behind the scenes with doctor can tell you if they are decent people.
So guess now since driving to SAC just seems overwhelming to me. I tried very hard to talk myself into driving that far...i could see friends etc...but i am so wiped out and been now actually showing signs my kidneys are acting up. I really must see someone. My GP here now has ALS, lou Gehrig...i get now why he was pushing me to find one. He has even asked around for me as well only to be told...about few in southern Oregon but as he put it...they are just adequate. He knows i like being treated with respect, kindness and as equal in making choices about what meds, etc i am going to take or use.
I have ton of alternative people here...but what happens is when i end up in the hospital they do not have rights and i am tossed around to what doctor is on call so i must repeat my story a million times. My GP runs any tests i know i need to be check every few months but he now has said he won't because...this is hard...he clearly has at most a year or so if he is lucky of being able to practice. He has promised to keep me as one of he final patients. Just not fair some one as kind as he has been to me, has terminal disease. Sure make me realize how good i have it no matter even if i am crying from pain or fatigue, fingers hips wont work cause of RA. Compared to what he has to go through my life is piece of cake! So for both of our sake i need to find a new Rheum at least...in Ashland or Medford in Southern Oregon. I even been considering Reno...but think Sac. is closer. Also if i have doctor in SAC or SF so i am hours from my home i imagine all my surgeries are going to be down there...so far from my home.
So I cannot ask around since there are not that many people here with Lupus. I have tried to locate SLE group in Medford but with no luck. IT must be about 80,000 people. So if anyone is from that area...i would appreciate help of decent Rheumatologist. I thank person who gave me name of guy in Sac on scripps dr...he sounds really great...just the drive i think it would be 4 hours from my house all way into his office. Right now just not sure i can make it.
None in Chico....i was told. Auburn or Grass Valley, Davis all might be bit closer than Sac. I also toyed with Eureka and that area
Oregon would really be much closer...so appreciate any one that lives there...must be someone in Oregon on this site!! I do thank everyone for suggestions...i did get some excellent ones to ask the office staff that will help greatly...so thank you for all of those bits of advice. But my doctor's voice is being effective ...he asked if i found one last month...he said he will worry if i do not have one that he likes too..lol! so really just have to bite bullet and guess put it out on as many sites as i know for SLE. again thanks..sorry i am unable to write short posts. I really apologize.
I asked the nurses in the hospitals....but that was when the PCP did rounds. Here in NY things have changed so much that your doctor doesnt really take care of you in the hospital any more...the hospital staff does. But the nurses should still know...who they like, who they use...personality...etc.!!!!