I have five auto immune disease including lupus and Sjogren’s syndrome. I have been diagnosed with Crohn’s disease, dry eye macular degeneration in both of eyes and arthritis which I have in one finger, my neck, both knees, both feet, and my lower back. I moved to a 55+ community and last August made it one year since I’ve been living here. I joined three clubs and there are a lot of activities, however,i’ve only attended One due to being too sick to attend others and the everlasting exhaustion, which never goes away it just varies in degrees. Yesterday was my birthday and I had signed up to go on a trip to New York to see the holiday show at radio city music Hall and dinner afterwords.this trip fell on my birthday, yesterday, and it was going to be my birthday gift to myself. Unfortunately, I was too sick to go, forfeiting $130 and having the ladies that head the singles group annoyed with me. All my friends have moved out of state, I am single, I have one sister but she lives too far away. I have an appointment with a different rheumatologist, because I don’t like the one that I have which I only have seen twice. I have an appointment with the new rheumatologist on February 26, 2015. This is the earliest appointment I could get with him. I am currently not on any medication for the lupus or the Sjogren’s syndrome. I cannot take the medication that is normally prescribed for lupus and Sjögren’s syndrome because my ophthalmologist said that I could not take this medication because of my dry eye macular degeneration.
How do I get a life and how do I make friends by going to activities at my community when it seems I am always sick or too exhausted to go? I am tired of merely existing. I have no one to help me. I and so lonely and depressed. If I only had one autoimmune disease that would be hard enough but I have five of them to live with. If anyone can offer some suggestions/help for me to live a life instead of just existing, I would very much appreciate it.