This is definitely a first for me but here goes.
A little history about myself. I am 44 years old, married for 26 years and have 3 great kids who are 24, 23 and 16. I love my life and have a great support system at home but I feel they really can’t understand what I am going through yet since I really don’t know myself. Everyone seems to walk on eggshells around me and that scares me senseless. Is this normal?
I was recently diagnosed in April so my brain is still processing all of this. I have had the last couple years with gastro issues, swollen joints, rashes, loss of hair and just pure exhaustion. I went to my doctor several times and always got the same song and dance. “You just need to rest” well I was tired of this answer so I got a new doctor and right away she ordered extensive blood tests etc. Everything was off the charts and once she received my records from the other doctor all my tests and blood work from the last 2 years were bad. I started on the medication in April and I don’t know what to expect at all.
I hurt all the time and it takes everything I have to function daily. I am finding things that I loved to do just don’t really appeal to me anymore. I can’t sleep at all and I am so exhausted.
Please tell me it gets better or somewhat manageable.