Has anyone been to an immunologist?

Wondering if I will do better than I have with the rheumy.

Thanks

I have not but it sounds like a good idea just from the name. After all, we are dealing with auto immune issues so an immunologist would make sense. I live in a small town with only three rheumys. I will have to research whether or not there are any immunologists round here. Thanks for the idea.

I was just wondering the same thing. My clinic now has one. Does anyone know exactly what they do?

Mari, my understanding of this kind of specialist is that they work a lot with people with immune deficiencies, and now more often those with autoimmune disorders. The goal is to get your immune system healthier and in balance. If given the opportunity, I feel at least a consult could be very useful. I wonder if those of us allergic to everything in sight would benefit. I'll have to do some checking and learn a bit more so I can post back.

Mari said:

I was just wondering the same thing. My clinic now has one. Does anyone know exactly what they do?

This is one specialist I have yet to see. I think a visit could be enlightening and useful, even if just a consult. It might answer some questions or provide different avenues of treatment. I hope someone comes along soon who has seen an immunologist and care share their views.

here is a quick summary about immunologists: http://www.wisegeek.org/what-does-an-immunologist-do.htm

this is doctor written with source footnotes: http://www.news-medical.net/health/What-is-Immunology.aspx



Mari said:

I was just wondering the same thing. My clinic now has one. Does anyone know exactly what they do?

I saw one as a child because no one could figure out what was wrong with me. The pediatric immunologist was the one who made my original diagnosis of Sjogren’s Syndrome. I went on to develop lupus etc… later. My impression was that they help diagnose everything that is wrong but do not treat the diseases. That said many things have changed in 35 years so perhaps their role has as well. I had to drive to San Francisco to see the ones at UCSF. They followed me for about a decade for research purposes. Being the youngest person in CA to be dx’d with Sjogren’s at the time meant my blood and tissue was valuable. I always hope that I helped save other kids from the almost 3 years of tests, stress, and sickness that I went through. I’d love to know if their role has changed and if they are more proactive in treating or if it’s still primarily diagnosis. I’m a little envious you’re seeing one. I have quite a few new symptoms that I would love to know if they’re related to the lupus et al. or if it’s some new disease popping up. Good luck and best wishes!

I have an immunologist and he has been a great advocate for my health. He was the one to recommend the pneumonia vaccine and he pushed for the IVIG treatments I have been receiving.

I’m glad someone push for IVIG because my doctors seem to be scared to fight my insurance company, my WBC cont to get lower and I have no resistant to anything and have no energy.

Never heard of this! Where does that doctor come in with the Lupus ? Please let me know so I can ask my doctor when I visit him in December!..Beverly L.


I am curious about your age.. my brother has autoimmune disease(s) about all his life. He was born in 1953 and even though we had Kaiser he was sent to Stanford and other private doctors trying to figure out exactly what was wrong with him. No he did not have sjogren's and not sure if he had any symptoms of it...I have it and we shared a lot of same problems.

I can say this..they had no clue whatsoever as boy what was wrong with him. He got lump on his neck...they used meat tenderizer to get rid of it!! They keep thinking he might have TB in high school...had him lose a prestigious college placement only week later be told not TB...so frustrating for him! heartbreaking. I know in 70's they kept saying i had mono...as we now know people can get more than once but back than...i was a mystery. They at this point started studying both him and i...since we both had health problems and were half siblings.

I just be curious if we are about the same time range? Would you mind answering me privately? I might miss your answer here.

Well thanks for any help...only if you really do not mind.
Annemarie said:

I saw one as a child because no one could figure out what was wrong with me. The pediatric immunologist was the one who made my original diagnosis of Sjogren's Syndrome. I went on to develop lupus etc... later. My impression was that they help diagnose everything that is wrong but do not treat the diseases. That said many things have changed in 35 years so perhaps their role has as well. I had to drive to San Francisco to see the ones at UCSF. They followed me for about a decade for research purposes. Being the youngest person in CA to be dx'd with Sjogren's at the time meant my blood and tissue was valuable. I always hope that I helped save other kids from the almost 3 years of tests, stress, and sickness that I went through. I'd love to know if their role has changed and if they are more proactive in treating or if it's still primarily diagnosis. I'm a little envious you're seeing one. I have quite a few new symptoms that I would love to know if they're related to the lupus et al. or if it's some new disease popping up. Good luck and best wishes!