I have been fed up for a while now with my doc, it got worse after I joined this group and started reading some of the other stuff that you all have been going through. I had kinda guessed that my Rheum wasn't doing all he could, and that there had to be more options other than the Chemo he has been suggesting.
I had an appointment this morning, and I went in with my "fighting boots" laced tight. It's amazing how much more attentive he became the second he found out i asked his nurses for a copy of all my records. He knows something is up, and he figured out today that I don't play nice when I am frustrated.
I understand that he has a huge clientel, but what bothers me the most is he is stuck on this idea that Plaquenal is the ONLY thing on the planet that is going to make me feel better, and but since I can't take it because It gave me a bad allergic reaction, he is at a loss. WHAT THE HECK!!!! He has my notes on his computer screen everytime I go in there, yet he can't ever remeber that he gave the stuff to me before nor can he remember why I stopped. So I told him, that I was sick of the fact that I have been seeing him for a year, and I have only gotten worse. I am sick of feeling like crap and having no options, when I know for a fact there are more things to try OTHER than Chemo. I also let him know that although I don't want to be on ANY medication, I would rather try SOMETHING instead of sitting around and doing NOTHING for this.
So, with that he ordered another round of blood tests. He also has me trying out Lyrica for the sensitivity (it only took me getting to the point of tears when I take a shower and the water hits me).
In April, I have an appointment with a new Rheumy. He is supposed to be amazing, but in the meantime I have this current Rheumy to deal with, since I refuse to be stuck without anyone to help if I have an issue.
I usually have no problem speaking up about things I don't like, but since I was diagnosed I lost that voice and that courage to stand up for myself, because I was so afraid to make the wrong decision. Let me tell you, today I am no longer afraid. I have my voice back, I will use it, and I will do what I need to do to help ME for once.
Anyway, just wanted to share. :)