Im now starting to feel some side effects of my medication and the lupus itself is really getting me down.
I feel like a terrible mum :( my daughters only 2yrs9months old so she doesnt understand at all whats wrong with mummy. And my mood swings are terrible :( I try to just walk out the room but the smallest things are getting to me. And I feel sick constantly so that makes me grumpy.
I work monday-thursday part time. And I pray that this isnt goingto effect me working. But bads days are just so bad.. and right now theres more bad days than good...:(
The bad days can be horrific, but, you have to get through them, for your daughters sake. I laid in bed like the next person but I wasted time not living and I regret that. Plan events to do with your family on a weekly basis then you’ll start feeling better
We all have these bad days. I feel bad just sitting/resting, was never my pattern. You need to use your energy for the most important activities. Cutting back at Work may be necessary, if you can afford to. And also planning FUN activities for yourself n child is essential. Don’t need to be costly outings. Picnic at park, Free days at zoo. Good Luck n keep the Faith!!
I am sorry to hear you are sad bit its a stage in lupus. I have started to learn that the medication for lupus can make our hormones go crazy and its worse for women i beleive kids are smarter than we think just talk to her t let her know its not her that mommy is going through something . It wouldn’t hurt to ask your rhuemy for a pshyciatrist its nice to hear an neutral opinion . In my experience family & friends tend to tell you what you want to hear.
It's ok we all have bad days. Just so your daughters know how much you love them, that's all they need. I was sick a lot
when my boys were little and they turned out great...now they are in their 30's. Hopefully things will get a little better they always do. Lots of ups and downs with this disease.
Hugs to you!
I worry about this too. I went through a period of time when I was so sad. I could not stop crying. My husband thought I was completely losing it and I could tell my sadness was wearing off on my children. It was a combination of so many things. I had a very stressful job at the time (current job is just slightly less stressful), I was so fatigued and in so much pain. I spent so much time wondering what in the world I ever did to anyone to deserve feeling like this. Then I started to feel really guilty that I was such a killjoy for my family, couldn't get out in the sun, too tired to plan things...I finally decided that I was going to take advantage of any and every good (or semi-good) days I have. I wouldn't suggest a prescription mood stabilizer for everyone, but it is something you can talk to your doctor about, if you continue to feel this way. My doc told me that I don't have to stay on it forever and it really does help. I also tried therapy for a while, but I found it really difficult to open up in therapy and to connect with my therapist. I ended up finding this site and it has been so helpful to me. We can't fix one another's problems and I wouldn't wish my pain, fatigue, etc. on my worst enemy, but it helps me so much to know that there are others who understand what I'm going through and offer me support, though they don't personally know me. I hope you are feeling better soon and have much better days to look forward to.
Im so sorry you are going through this! It happens to me often. I am thankful for a mother who listens to me and lets me vent. As someone on here told me, find soneone you trust and just let it out. I have found it very helpful to do that. Hope you feel better soon!
Yes. Unfortunately some of our medications can make us very depressed. The best advice I can give you is to talk to someone about this. Do you see a therapist on a regular basis? If so, how often?