Bladder Question

Hello all, First let me say I don't know what I would do without this group.. You guys are really my life line and for that I thank each and every one of you.. Now on to my current issue, lol

Has anyone experienced bladder issues.. I Notice that most of the time when i go to the bathroom I am really pushed almost about to pee on myself.. Well low and behold today, I actually did it.. I was rushing to the bathroom and didn't make it and before you know it my dress was wet. I'm wondering if this is a lupus issue or something else.. So I ask has anyone had any issues with this, and if so what did you do?

I have that particular problem before the lupus diagnosis. Now In the morning it hurts but no burning.

  • Lupus cystitis, which is inflammation of the lining of the bladder, may cause frequent urination and is associated with abdominal discomfort, including vomiting and weight loss.
  • Medications used to treat lupus may cause signs or symptoms of kidney disease that can be confused with lupus nephritis.
  • Because your body’s waste matter is processed by your kidneys, testing a sample of your urine can show any problems with the way your kidneys are functioning. The most common tests look for cell casts (fragments of cells normally found in the blood, or fragments of the tubules of the kidneys) and proteinuria (protein being spilled into your body because your kidneys are not filtering the waste properly).

could be a number of things but i think it is lupus related, im no doctor but i can date back as much as 10 years ago that i was sick and was getting mis-diagnosed. i would have to go to the er and get cathed, the er doc and urologist said it was neurological, i could not pee and it would be so painful, my stomach would swell and would look like i was 9 months pregnant . now i am having a strong urine odor but have no infection ???? and when i know i need to go it takes a few minutes for it to come out and i have to push and not too long ago i was leaking at night and had to wear a pad and fitted undies-do you have children i think that makes it worse and it can also be hereditary so my gyno says-

hi kel i have sle lupus and many years ago i would suffer as though i had a uti and still do but they know now! that it is not a infection it is symptoms of a uti and can be extremly painful like cancer,i myself as a teenager would go to get catherized consistently and drank much crandberry juice a big huge bottle while sitting in and out of a warm bath(which found out later that the cranberry juice makes it worst) like i said they did not know and it disrupted my life in a big way realionships etc.its called interstitial cystitis (IC for short term we use)there is much info i will post the site, there is much info there and if it is what you have there is diet info very important and treatments to choose from, the site will direct your needs i hope this helps and you get some relief And hi,cajun u may want to check the site out also it doesn;t have to burn it could go from a scale 1-10 in pain and we call it ic belly,take care

hmmmm, ya well i just am not getting diagnosed right and i dont know what to do thing is i have this odor doctor took a urine sample and its normal ? i do not have any pain, oh yes, i use to but not now, he said the leaking bladder was a side effect of meds ? go figure, i live in a small alabama town and i just cant seem to get any answers just like tomorrow i have to drive over 2 hours to my rheumy!!

thanks all, I need to go see my Rheumy but those 50 bucks every time I go is killing my pockets.. I'm a single parent and I just can't afford to pay that for every visit. I wish my insurance would cut that cost a little more, that's the only thing keeping me from seeing mine.. and I need to see a dermatologist but that's another 50 bucks as well.. This lupus is turning out to be a very expensive inconvenience..

I also developed bladder problems after lupus. Never had them before. I was wondering if it’s an age thing, a lupus inflammation thing or a childbearing thing. My kids are all young adults now. My sis has interstitial cystitis which is also autoimmune. When she eats certain foods her bladder gets inflamed. She had a cystoscopy and this is when they diagnosed it. I sometimes wonder if this is what I have. Here is a link also:
Here is some info. from the link: In general, symptoms are Urinary frequency (as often as every 10 minutes), urgency, and pressure in the bladder and/or pelvis.
Some patients report nocturia (waking at night to urinate), urinary hesitancy (needing to wait for the stream to begin, often caused by pelvic floor dysfunction and tension), pain with sexual intercourse, and discomfort and difficulty driving, travelling or working.

Some people with IC/BPS suffer from other conditions that may have the same etiology as IC/BPS. These include: irritable bowel syndrome (IBS), fibromyalgia, chronic fatigue syndrome, endometriosis, vulvodynia, chemical sensitivities, allergies, Sjogren’s syndrome, Systemic lupus erythematosus, and anxiety disorder.

hey Torie, i am brand new to this group and this was the first thing i searched, since all of my other lupus symptoms i know are related to lupus--this one i wasnt so sure! im really glad i joined this group and read your post already, it made me very emotional! i have also had the almost (and occasionally) uncontrollable urges to go to the bathroom, and have too wet myself three times in the past year. i have been trying to find out if this is lupus related or not- it seems it could be, because of the widespread inflammation likely affecting the bladder. do you also have to pee very frequently? i will be scheduling an appointment with a urologist, but i wondered if you had discovered anything in your quest??

Most the times I can’t pee. It’s nerve damage in my ureatha from chronic utis…