I'm not sure if I have Lupus or not yet, but I have chronic pain in my legs and lungs from blood clots. I have an autoimmune disorder called "Hughes Syndrome - APS!" I have been cut down to just three Norco a day by my pain management doctor. He won't give me anything else besides Neurontin which doesn't work. My primary care doctor flat out refuses to write scripts for pain killers, not even for Tramadol.
I had to take a few extra pills last week because I was in a lot of pain from doing physical activity. I had to go four days this week with no pills at all. I'm seriously contemplating discontinuing the Norco and getting rid of the pain management doctor all together. I am fine with my current level of pain as long as I do not do an physical activity. Once I move around, go to the store, do work for more than two hours a day, the pain becomes really bad. My chest pain is constant though; same with the leg - but it's only a level 4 right now as long as I sit here with my legs elevated.
I'm going to look into getting a medical marijuana card. You get a card that costs 200 dollars for two years - and there are no hoops to jump through like you do with primary care docs and pain management docs. No one hassles you when you go to the shops to pick up your supply. I think I will just smoke some at night to help me sleep when the pain is really bad. What do you guys think about that plan?
And to the poster of this thread, you are most definitely not crazy. Doctors have no guts these days to band together and stand up to the DEA and advocate for their patients who live in chronic pain. I think it's a travesty of justice that so many people are going under-treated for their pain when we have the meds available to make them comfortable. I hope things get better for people with lupus and chronic pain. I hope you find a new doctor as well.