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Poor memory recall


#9

Thank you for all these comments, I did not know any test was available for this, (I am going to look for a new rheumatologist) This memory problem and fogginess is more than troublesome to all of us and those that we love, especially if we are the head of the house or the primary bread winners. This site is so important to support one another, once again, thank you.


#10

Yes it is! You’re Welcome! Hang in there :slight_smile:


#11

James,

I didn't want to admit it, but I will. I'm finding myself forgetting

the little things alot more. Like.. Where's my keys, where did I park.

I was just diagnose with Lupus not long ago. Is this part it?


#12

Unfortunately, this is a symptom of Lupus. Some of the medication helps a little bit, but not much. What I do is write notes to myself, slow down and think before I do something. It is not easy, but this discussion board is a big help. If you ever get scared, or upset with yourself, just remember you have alot of friends going through this with you, simply post a discussion and someone will reply. Stay positive.


#13

My husband is always telling me to take notes. Great idea-if I could remember that I took them in the first place. LOL!

You are right, nothing about this is easy. I am starting to get in touch with several of the people here, and it is very nice to see how many have responded to my posts. No one else understands this thing called Lupus, and it is nice to have someone out there who really, truly, does.


#14

Fortunately, well before I found out I have Lupus, I had gotten into some very good habits regarding the stuff I use all the time, my cell phone, hats, etc. I have places where I put them, and try really hard to always put things back. Not easy when my husband is the opposite of organized, and never puts anything back. Then, I can never remember if he took the screwdriver and lost it, or if I did? <VBG>

If you work at it very hard, maybe you can get into habits of organization that can help you out. Long term memory isn't as much of a problem, so eventually your habits will go long term, and you can kind of guide yourself with that.


Tammy said:

James,

I didn't want to admit it, but I will. I'm finding myself forgetting

the little things alot more. Like.. Where's my keys, where did I park.

I was just diagnose with Lupus not long ago. Is this part it?


#15

Hey James, I can definitely relate to what u are going through. Janice have had this discussion before as well. I get that way and they just did a neurophycho analysis, I will get the results on the 13th and I will be glad to share the results with everyone. I know that you can get what is caused Lupus Fog, but my memory is so bad sometimes I have forgotten my own address and I have lived here for almost 8 years now. SCARY HUH!!


#16

My memory is horrible! It used to be fabulous… but not anymore. I find myself doing stupid things all the time (loading dirty dishes into the fridge, folding the basket of dirty clothes, ect.). I find I have to really focus on the task I’m doing or who knows what I’ll do! It’s a very frustrating problem! I have to enter all appointments and “to do” lists into my iPhone or I will completely forget. Nothing like running to the store and forgetting why you went!


#17

I started noticing it takes me longer to recall certain words or ideas, when I am moving fast or thinking of multiple things at once. So, to accommodate my life, at work, I start to write down, what i need to cover (I am a teacher) and take it slower then normal. It works.. All over my desk are post it notes with messages (conference with this student etc) It is working for me. Slowing down has an effect on my daughter, she wants to rip and run like we use to, but when I can't I don't push myself, I just don't. She is understanding, but I make sure we do something cool when I feel better or make her favorite dinner and rent a movie.

Recently, my head has felt weird, almost a tingling sensation accompanied by blurry vision. I have to make an appointment with the ophthalmologist anyway stated by my doctor.


#18

what were we talkin about? jk :slight_smile:


#19

OK, you are funny. LOL!


#20

I have been known to start putting things in the fridge that belong in other places. Don’t feel like the Lone Ranger. I have to really concentrate in order to get anything done. I forget why I went to a room to get something all the time. Ah, that is why we are here, though, isn’t it? To talk and laugh about stuff that would otherwise make us cry?



Roni said:

My memory is horrible! It used to be fabulous... but not anymore. I find myself doing stupid things all the time (loading dirty dishes into the fridge, folding the basket of dirty clothes, ect.). I find I have to really focus on the task I'm doing or who knows what I'll do! It's a very frustrating problem! I have to enter all appointments and "to do" lists into my iPhone or I will completely forget. Nothing like running to the store and forgetting why you went!

#21

You have to try getting allergy tested. That really helped with the brain fog. Unfortunately, it didn’t help with the memory. I have a sharp, clear mind, but can’t remember anything.



fighter said:

Hey James, I can definitely relate to what u are going through. Janice have had this discussion before as well. I get that way and they just did a neurophycho analysis, I will get the results on the 13th and I will be glad to share the results with everyone. I know that you can get what is caused Lupus Fog, but my memory is so bad sometimes I have forgotten my own address and I have lived here for almost 8 years now. SCARY HUH!!

#22

:slight_smile:



RJQ said:

OK, you are funny. LOL!

#23

RLQ, they do have a test for the memory loss. I just had one and I am waiting for the results, you have to have what they call a neuropsycho analyse. They take you through alot of test to see how well you remember, just see a neurophyciatric. My memory is so bad now I hope that I spelled it right. Spelling used to be my best subject in school and my family came to me when they needed a word spelled, now I second quess myself or have to wait a few minutes to try to remember, which really doesnt work anymore

RJQ said:

Do they have a test for poor memory? I would like to get one, if so. Anyway, I KNOW I can't remember stuff. I also have problems with forgetting very important things, and my husband gets very irate with me about it. I had to give up my job because the new BOD decided they had to have someone who could keep precise hours working there, even though I am much more qualified (full charge bookkeeper) than the girl who is currently there. Not fair, but certainly is reality.

#24

Hi fighter,

I hadn't heard of this test. I have to rely on the County system for any testing now days, so it is unlikely I will be getting that one done. I got the tests for the Lupus before I knew I had it, duh! LOL! anyway, I can't afford the health insurance now days, because I have the Lupus. Kind of a vicious cycle, so to speak. My spelling isn't too reliable these days, so no worries. You can use Firefox as you browser-it does have spell check built in. Comes in very handy.

Well, at any rate, I DO remember how well I USED to remember. Just can't remember anything short term these days.


#25

My husband still thinks I should be as capable of doing everything as I ever was, I can’t convince him that I am no longer normal. He says I was never normal. It is very hard for otherwise normal people to understand what we have to go thru. You are not alone. This is where you can have contact with people who know exactly what you are talking about.


#26

this is so true. my daughter feels that i should be fully capable as well, although she beginning to see a little. her daughter, my granddaughter had her tonsils out this summer and when i said my knee hurt too much (when she’d ask me to play outside with her) she got a thoughtful look on her face and said, “it really hurt when i got my tonsils out too.” and her face was full of compassion.


#27

you have my sympathy…if i can be of help…if you need to talk just post it. i check my comp several times a day. i use compt for everything—hulu (no tv here) and music (LOVE youtube) so i am here a lot.


#28

Thanks, it is nice having people here who understand what we are all going thru. Hope we don't freak the younger people out with what is happening to the slightly older bunch. <g>

Where are you living, where there is no T.V.?