Life With Lupus - Online Support Group

Well, now the cardiologist knows what my heart is doing, but we don't know why yet.

I was having so much pain in my chest, arm and neck that I had to call for an appointment. Doc increased one med and gave me nitro as well. The stress test was better than he expected---not as much plaque in the arteries as he thought there would be. So I am thinking No Ablation? maybe.

The problem is that it beating too fast and I am having way too many extra beats. My heart is a little too thick too--from all that work! lol

He told me to stop drinking green tea!

I can't believe it...all these years I thought i was doing myself a favor by drinking green tea. I can still have herbs and ginger...and can even have 2 cups of coffee, but no tea. Who would thunk it?

It is afternonn and several hours after my visit. I am still tried and still having pain, but not as burning and not as intense. My son asked how I was feeling and I told them I actually feel better even though the symptoms are not markedly decreased.

Relief comes because I have the right information.

It helps to know what is going on even if what is going on is not good;a little information goes a long way...and the validation that what I am feeling is not all "in my head" is a great pain-reducer. Now I know what to do, and I know what to expect and when to call for help.

Information leads to awareness, awareness leads to insight and insight can change behavior.

I want to live. I have three grandchildren and will have more no doubt and I want to be here to read to them and write songs and knit hats and crochet goats...

I also have a new internist who is determined to look at the whole picture to--to see me as a whole person so that she can really help me. So I am blessed.

Before Lupus If anyone had told me that I was going to have heart trouble, high blood pressure, migraines, deteriorating bones, internal bleeding, and so many other little problems  I would have scoffed and cartwheeled away.

...ok, maybe no cartwheel, but I would have tilted my axis with a zippy sir-shah-sa-na pose and said, "No way. I am too healthy and I do yoga and meditate and eat all the right stuff. I can't get sick."

And yet, here I am. Still and quiet with today's news:

It's not like I was not trying to get well before, because I did. But my fight was a frantic one, a frantic turning on tiptoe one way or another to this doctor or that doctor and never really taking what they said to heart. I did follow orders, I was very compliant. But the battle was an outside thing; my body felt more like a vehicle that wasn't working right and the doctors were like mechanics who knoew more or less how to fix one failed part or another.

this is different.

I am calm in my heart; I have taken this news to heart.

The battle is won. No, the battle is one.

I am am greater than the sum of my parts and from this quiet place inside where I am  listening to my body's pain the way a mother would listen to her baby I know that things are going to be different from now on. 

I don't know why, but  this part of the illness has changed me. It feels like my body is a room (the picture I get in my head is of a little chapel I used to go to on my lunch breaks when I worked at our little hospital--within the tiny chapel was an alcove with an altar and kneeler...the alcove had a skylight that made the alcove look like you could step up into heaven) ---so my body is like that little chapel and my heart is like the alcove.

I know I am going to be well again. I just didn't know getting well would be so quiet and peaceful.

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Comment by Suzie D. on January 7, 2012 at 8:07pm

*Sinus* (Correction), it is a defect of the electrical part of my sinue node in my right atrium....My heart always looked good, just my electricity was messed up, :/ ???? Most likely from inflammation, HECK, what isn't from INflammation, right??!! Suzie :))


Moderator
Comment by Suzie D. on January 7, 2012 at 8:05pm

Dear Jan, I had an ablation that lasted 4 hrs when I was 21 yrs. old, from Innapropriate Sinue tachycardia....it was TOUGH!! I developed it when everything else w/ this Autoimmune Crap began.....So, YES, it most probably is related too..

:( Anyways, I now, am on High Blood Pressure meds (which is NEW 4 me) & cardiac water pill......it has worsened, as I explained months ago. But I am doing better & YOU will too in due time, Jan! HAVE FAITH!! HAVE HOPE!!! This is another stupid bump in the road, it will once again smooth out. Do not fear my friend, you are in a good place with your Faith & I have FAITH in YOU!! We are all very Strong, "We STRONG LIKE BULLS" ;)....Like the bulls in my pasture, lol.....gotta laugh sweetie, we must find some humor, it will keep us hopping=) !!! So, just let the doc fig. out what u need done, stay as positive as u can, and know I am here to help u thu all of this! Pom-Poms Ready! ;) {{HUGS}} Suzie :0) Xo


Moderator
Comment by janice on January 6, 2012 at 8:35pm

Thank you so much...your prayers mean a lot to me

Comment by Fairykissez on January 6, 2012 at 6:32pm

Really green tea, thought that it was good for you? Its horrible to be so health conscience your whole life and then still get sick. Im praying for you Janice and I hope you feel better soon.

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