"Hope Tank empty? Fill up here:
http://youtu.be/lZ-pz1rc900 ;"
Moderator
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Ben Munoz
- Male
- Austin, TX
- United States
- Blog Posts (7)
- Discussions (5)
- Events
- Groups (2)
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- Photo Albums
- Videos
Ben Munoz's Groups
Ben Munoz's Discussions
How to Create Group and Organize A Meetup in Your City
Started this discussion. Last reply by astrid40 Dec 21, 2011. 3 Replies 0 Likes
Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and…Continue
Trouble with the Send Button (or Other Buttons)
Started Aug 13, 2011 0 Replies 0 Likes
Apologies, this is a re-ocurring problem. I've found that if I scroll down on the page farther, creating 2 inches between the "Send" button and the bottom of the browser window, then it works. When…Continue
How To Make Our Community Easier to Find
Started Jun 27, 2011 0 Replies 0 Likes
A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by linking to us from…Continue
Gifts Received (4)
Red Ribbon
From Patter
Red Ribbon
From Suzie D.
Chocolate Birthday Cake
From Melissa D. Callender
Red Ribbon
From Suzie D.
Ben Munoz's Page
Latest Activity
ModeratorBen Munoz posted a blog post
May 2012 LifewithLupus Community Newsletter
Dear Friends and Family of LifewithLupus,We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead! Here are some highlights:Total members for all communities at the end of April: 17,629. This is 924 higher than March, our biggest…See More
JON joined Ben Munoz's group
Family and Friends of Lupus
Where friends and family meet to share views, insights and stories. See More
Moderatorastrid40 commented on Ben Munoz's group Musical Dedications
"All Great songs Janice. I have now listened to the one with the first name Neil, sorry his last name escapes me now, and the other one with the name James in it. Sorry my memory is playing me up so badly with this flare, its like a total fog,…"
Moderatorastrid40 commented on Ben Munoz's group Musical Dedications
"Great songs Janice. Loved the My Sweet Lord and Let It Be, Havent listened to any others yet, but those two are really great songs to listen to. You really have the knack of remembering great songs. Take care, love and hugs Astridxoxo"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"for those who are called to evening prayer
http://youtu.be/9YJXJW59Z3s"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"http://youtu.be/a48gIt84AZc my sweet lord"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"I am so alive today! I slept, I dreamed, I woke up felling pretty fine.
There is a river running through my veins: It sings! It sings.
http://youtu.be/qC6g472wVHY"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"Let it be
http://youtu.be/RdopMqrftXs"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"is this you? oh, and i dare you to listen without dancin
http://youtu.be/skydln4BhDI"
Moderatorjanice commented on Ben Munoz's group Musical Dedications
"To all of who have been blessed in this way: http://youtu.be/LTJ9CLGYMDQ"
ModeratorTez_20 commented on Ben Munoz's group Musical Dedications
"Julie lovely to see you've joined and it's such a lovely video and i look forward to seeing more.
Love Terri xxx"
jujubeee commented on Ben Munoz's group Musical Dedications"Aw, thanks. It's all you guys that inspired me to make the video in the first place. I plan to make more :) Much Love, Julie"
Moderatorastrid40 commented on Ben Munoz's group Musical Dedications
"Hi there jujbeee, You choice of song and words made me really emotional, that was so good what you have put up. I am sure alot of people who have Lupus could relate to the clip with the song, thankyou for adding that, i had to turn it off for a…"
jujubeee commented on Ben Munoz's group Musical Dedications"http://youtu.be/nuQW8zMkKN4quicktime videohttp://youtu.be/n8A-8xClIdoThis video is to help bring awareness to LUPUS in memory of the many lupus warriors who have lost their fight with this disease, and to give HOPE to all people with lupus by…"
jujubeee joined Ben Munoz's group
Musical Dedications
Music to inspire ourselves. Music to inspire others. Music to dedicate to other members.See More
Profile Information
- Please share your story with the community...
- Hello and welcome to the community. We started it so that members could share their stories, learn more about the condition, and connect with others. To learn more about our mission and about other patient support communities, visit http://www.bensfriends.org or email info@bensfriends.org.
Ben
Ben Munoz's Blog
May 2012 LifewithLupus Community Newsletter
Posted on May 26, 2012 at 6:54am 0 Comments 0 Likes
Dear Friends and Family of LifewithLupus,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead!
Here are some highlights:
Total members for all communities at…
ContinueApril 2012 Community Newsletter
Posted on April 21, 2012 at 3:30am 1 Comment 1 Like
Dear Friends and Family of LifewithLupus,
April – the smell of spring in the air!
Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!
Our presence is being felt…
ContinueMarch 2012 LifeWithLupus Community Newsletter
Posted on March 23, 2012 at 10:00am 0 Comments 0 Likes
Dear Friends and Family of LivingWithFibro,
February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!
IN THIS …
ContinueFebruary 2012 Community Newsletter
Posted on February 22, 2012 at 9:24pm 1 Comment 1 Like
Dear Friends and Family of LifewithLupus,
As you well know, living with lupus can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the…
ContinueComment Wall (52 comments)
- At 11:24pm on May 2, 2012,
Moderatorjanice said… i love the new music group!!! great idea
- At 5:39pm on February 25, 2012,
leanne said… Thanks so much. I was avoiding posting for privacy reasons but I feel much more comfortable now! THanks for having this site!
- At 5:10pm on February 23, 2012, leanne said…
Hi Ben,
I was wondering what protection I have against future employers viewing info I add to this site or my page. I get nervous about potential future employers finding out too much info on me and using that as reason to not hire (even thought I know legally they aren't supposed to). Are there special securities or settings I should use?
Thanks,
Leanne
- At 10:04pm on February 3, 2012,
celeste said… thank you for the tip ben. im so new to the whole computer thing. im learning as i go. celeste
- At 1:10pm on January 15, 2012, Donna said…
- Hi Ben, I just found your comments! We have had a rough year. Toxic black mold was found throughout our home and we had to move. With just my DD and I we packed up 8 rooms and we are slowly unpacking in our 4 room apartment. We did have a good friend help us move boxes! I pulled my sciatic nerve in the process and was bedridden for a month. My lupus went into a flare and I have been battling one illness after the next. Hopefully, the flare will let up soon! I have joined Ben's Friends and learned a lot. Thank you for establishing these groups. Donna O.
- At 6:24pm on December 26, 2011,
Carey said… God Bless you for what you do! To live through the experience you did & then use it in a way to improve the lives of others - pretty amazing!!
- At 12:56pm on December 20, 2011, Jennifer said…
- There are so many wonderful people on this site. Each with their own unique story. Glad I foud y'all so I can share too :)
- At 11:57am on November 23, 2011,
Moderatorjanice said…
- At 3:17am on November 6, 2011,
ModeratorJohn "JC" Colyer said… Ben,
I set it so the home page can be viewed but to see anything else you must be a member, if you think it should be public , ok
JC
- At 9:31pm on November 2, 2011,
ModeratorJohn "JC" Colyer said… - Lets try it
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