Life With Lupus
Welcome to Life With Lupus. Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.<br>Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.<br>Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Newbies Guide To Lupus
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Open discussion about issues involved with Lupus
Discussion specifically related to symptoms you are having
Having a bad day? Are you flaring? Have your friends and family found their earplugs? Well, this is the place to let it rip! We are here to listen and we get what you are going through. The is is a safe place to share your feelings and to unburden yourself.
Positive Pick Me Ups
A hope-filled place to exchange words of encouragement, personal successes, inspiring moments and coping strategies.
Information to Share with Loved Ones
Information and letters to give to loved ones, coworkers, and caretakers of someone with Lupus
Health Insurance and Disability Coverage
Issues specifically dealing with health insurances and disability coverage
Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with Lupus. Whether you are focusing to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment.
Physician Recommendations (Positive Review Only)
A good provider is hard to find! Please help out your Lupus Family by recommending your favorite practitioners here. Hopefully, with your help, we will be able to develop a comprehensive list of quality, compassionate, and understanding providers. Please note that we can only accept positive provider reviews on this site.
Member Photos and videos
Discussion about this site, its organization, how it works, and how we can improve it.
What's New With You?
A place to reconnect with community and share personal and health updates.
News From Bens Friends.
Messaging & Chat
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
Click to enter chat