Life With Lupus - Online Support Group

Welcome

Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Join or Create a Group

Questions? 
Check our Help tab above.

YOUR SCREEN NAME

To maintain your privacy in a google-y universe, please do not use your real-life name.

Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD, LLB, Dr, MSW, Sr, Dame, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here. 

Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, please.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

== ==

BaltimoreBaby
Auburnm
Purplebutterfly
Trisha
Reddog
Lynn

Groups

 

What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Many celebrities with lupus deal with the daily challenges of the disease as well.

Forum

Hello

Started by Andrea in Introductions. Last reply by Queenpink 5 hours ago. 3 Replies

Hello! My name is Andrea and I came across this website while searching for information about lupus. I was diagnosed about 2 1/2years ago. I have good days when the lupus does not bother me as much and days when it takes all the energy I have just…Continue

Tags: Hello

Very new to this

Started by Sweetie Pie in Introductions. Last reply by Queenpink yesterday. 3 Replies

Hi I'm a 34 year old mom of three children age 13/12/7 years old my husband works a lot so I take care of pretty much everything I had Lupus symptoms For a long time my PCP ignored it even though I told him multiple times how I was feeling it wasn't…Continue

Parent of Teen Just DX'd - Our Story

Started by TNTLamb in Introductions. Last reply by lynn4545 on Sunday. 2 Replies

Good morning!  My wife Tenia and I have built our family with special needs children both as foster kids and formally adopted 9. Life has turned out pretty well for those kids but with a lot of challenges. Tana is one of these kid's kids. her dad…Continue

being driven bananas

Started by Queenpink in Emotional Support. Last reply by Queenpink yesterday. 5 Replies

I am going bonkers with the pain  now its summer here in ireland.I can't stick it at all the humidty is driving me insane with the pain fatigue and lung issues.I dont know what to do to make me feel better.The plaquenil is NOT helping i am out of…Continue

Latest Activity

Queenpink replied to Andrea's discussion Hello
"Hi andrea.I also have fibro along with SLE.It's horrible when bother fibro and lupus flare at the same time,i can relate to what you are going through.I also have GERD,ibs,epilepsy and asthma.You are not alone in this.Message me anytime if you…"
5 hours ago
Vera replied to Andrea's discussion Hello
"Hello Andrea, I'm glad you found this site. I was diagnosed 4 years ago and there is still so much to learn. I was diagnosed with lupus and fibromyalgia and also have Gastroparesis. Some days are harder than others, but just coming to this site…"
8 hours ago
Lacey posted a status
"Sorry for not being active for so long! But I'm back now. How is everybody??"
yesterday
Lacey updated their profile
yesterday

Mobile App

Keep in touch with friends. DOWNLOAD the Ben's Friends iPhone App now.

Top Content 

1 Work stress

Work stress

Posted by Northrock on July 1, 2016

2 Parent of Teen Just DX'd - Our Story

Parent of Teen Just DX'd - Our Story

Posted by TNTLamb on July 23, 2016

3 being driven bananas

being driven bananas

Posted by Queenpink on July 5, 2016

4 Hello

Hello

Posted by Andrea on July 25, 2016

5 Very new to this

Very new to this

Posted by Sweetie Pie on July 25, 2016

 
 
 

Help Us Help Others

Support Ben's Friends

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

LifeWithLupus is a peer-to-peer network

To get support, give support.

Blog Posts

Need information

Posted by Sweetie Pie on July 25, 2016 at 6:17pm 0 Comments

pain

Posted by sandielouise on May 17, 2016 at 10:49pm 0 Comments

Iv injection

Posted by Che Che on May 1, 2016 at 2:38pm 0 Comments

Surviving In A Valley...

Posted by vrr1970 on March 3, 2016 at 12:26pm 0 Comments

Gift Store

About

© 2016   Created by Bensfriends.org   Powered by

Badges  |  Report an Issue  |  Terms of Service