Life With Lupus - Online Support Group

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Events

 

What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.


Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.


Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Forum

Does fatigue come on quickly for you?

Started by Lilac83 in Symptoms. Last reply by purplebutterfly 4 minutes ago. 2 Replies

I'll be fine for a couple of days and having another good day and then suddenly BAM! fatigue hits me hard and I have zero energy which turns my mood grouchy and I'm in survival mode and just want to go home to sleep. If I'm at work, i get through…Continue

ANA and methotrexate

Started by tK in General 18 hours ago. 0 Replies

Do any of you know if methotrexate treatment will change a positive ANA to negative?

Mouth Lessions

Started by Dewing3569 in General. Last reply by dawncelest yesterday. 3 Replies

What do people with mouth Lessions use to help with the discomfort? I have never had them before now. It's all new to me. It's on the top of the roof of my mouth. It's hard to eat anything or drink anything. It feels like I burned the top of the…Continue

Waking up dizzy and sick from naps

Started by Natasha in Symptoms. Last reply by Natasha on Friday. 2 Replies

Does this happen to anyone else? For the past few weeks, when I wake up from a daytime nap (I work overnights) I wake up very dizzy, nauseous, fast heart rate, and just overall sick as if I had motion sickness, but just from simply opening my eyes…Continue

withdrawal symptoms, was not prepared for this.

Started by Tarra in General. Last reply by geneva21 22 hours ago. 7 Replies

My new doctor is working on getting me off of a lot of the unnecessary medicine that my old doctor had me on so he can treat me for lupus more effectively. He said it was going to be hard, and there would be withdrawal symptoms. That's why he was…Continue

SSID: Is it even worth it?

Started by MT411 in General. Last reply by MT411 on Thursday. 2 Replies

So I applied for SSI/SSID and after about a year I finally have a hearing scheduled next week.  The hearing just happens to coincide with the last week of classes so it’s really not a great time to plead my case.  My mom really was the one that…Continue

Blog Posts

ITCHING

Posted by Tweety on April 26, 2015 at 1:12am 0 Comments

Hi guys,

Does anyone else itch like crazy?

Latest Activity


Moderator
purplebutterfly replied to Lilac83's discussion Does fatigue come on quickly for you?
"Hi Lilac83 This is my opion I think on our good days we tend to over do it and then it catches up with us. I try and stick to a schedule even on the days I feel good and not over do it. I have gotten lost on my way home from work when this has hit…"
4 minutes ago
hopeful replied to Lilac83's discussion Does fatigue come on quickly for you?
"I can be having an ok day, when out of nowhere the fatigue and achiness just washes over me like I've been drugged or something, I've no idea what happens."
2 hours ago
Tweety posted a blog post

ITCHING

Hi guys,Does anyone else itch like crazy?See More
9 hours ago
Lilac83's discussion was featured

Does fatigue come on quickly for you?

I'll be fine for a couple of days and having another good day and then suddenly BAM! fatigue hits me hard and I have zero energy which turns my mood grouchy and I'm in survival mode and just want to go home to sleep. If I'm at work, i get through the day and when I get home, collapse on the couch to sleep. If I'm lucky enough to be at home when it hits, I just go lie on the couch to sleep for hours.  Do any of you get fatigue that hits fast like this? I get this several days a week.  Normally,…See More
13 hours ago
Lilac83 posted a discussion

Does fatigue come on quickly for you?

I'll be fine for a couple of days and having another good day and then suddenly BAM! fatigue hits me hard and I have zero energy which turns my mood grouchy and I'm in survival mode and just want to go home to sleep. If I'm at work, i get through the day and when I get home, collapse on the couch to sleep. If I'm lucky enough to be at home when it hits, I just go lie on the couch to sleep for hours.  Do any of you get fatigue that hits fast like this? I get this several days a week.  Normally,…See More
14 hours ago
Lilac83 replied to Lilac83's discussion How often to see rheumatologist for stable lupus with no organ involvement?
"thanks for the replies. makes sense "
14 hours ago
tK posted a discussion

ANA and methotrexate

Do any of you know if methotrexate treatment will change a positive ANA to negative?
18 hours ago
geneva21 replied to Tarra's discussion withdrawal symptoms, was not prepared for this.
"Then it is most likely the cymbalta.  The doctor should lower your dose as you wean off of it. Hope you feel better soon. "
22 hours ago
Tarra replied to Tarra's discussion withdrawal symptoms, was not prepared for this.
"The gabapantin is tapered. The Cymbalta I Have No choice. I ran out."
22 hours ago
baker24 posted a status
"I hate Lupus!!!!!"
23 hours ago
Tweety left a comment for Auburnm
"Hallo Auburnm, thanks for the welcome."
yesterday
Lupus Warrier, RN left a comment for Lupus Warrier, RN
"Thank you!!!:)"
yesterday
Jon_sparky posted a photo
yesterday
Jon_sparky replied to Jon_sparky's discussion Doctor ordered Vectra DA test for Lupus follow up?
"Thanks Geniva I will pass on the names if need be... Yes dawn you are probably right, they do seem to come in clusters. It would be nice if they had something that at least arrested the erosion of the joint, before there is nothing left. AS usually…"
yesterday
Tweety and Auburnm are now friends
yesterday
dawncelest liked Jon_sparky's discussion Doctor ordered Vectra DA test for Lupus follow up?
yesterday
 
 
 

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