Life With Lupus - Online Support Group

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Blog Posts

More Confused Than Ever

Posted by Sunflower on May 19, 2013 at 1:11pm 4 Comments

After my 1st visit to rheumy I thought I had a clear diagnosis, which was lupus, Hashimoto's, antiphospholipid syndrome, inflammatory arthritis-maybe RA, and fibromyalgia.  I started plaquenil and had a steroid injection.

Just as I began…

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i guess it's caught up with me....

Posted by vrr1970 on May 15, 2013 at 12:00pm 1 Comment

good afternoon friends~

hope today finds you happy and well. as for me, i'm waging war with day 2 of a flare up. it has been a really long time since having a flare this rough with the symptoms i fought with in the beginning. my spine and…

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April 2013 Community Newsletter

Posted by Ben Munoz on April 26, 2013 at 3:38am 0 Comments

Dear LifeWithLupus Family and Friends,

Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.

Those who have listened to Scott’s …

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Preparing For An Appointment With A New Doctor

Posted by Ben Munoz on April 27, 2013 at 6:58am 2 Comments

Finding a new doctor can be difficult, and very scary.  Being prepared can make the whole experience much easier on you, and on the new doctor.  Remember that the doctor works for YOU, and if you are…

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ClinicalTrials.gov Studies

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Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.
6. Please take all political opinions to the appropriate place on the internet.   

Specific doctor or hospital names in a positive context are welcome.
Thanks for your cooperation.
 
 

What is Lupus?

Lupus is a systematic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Forum

Exactly What I Needed

Started by wolfspirit in General 1 hour ago. 0 Replies

I have been sinking and sinking into myself this past week. Not only was fatigue pressing into my spirit but I was sinking into a dark hole within. Someone said something to me today when I got out of bed, "It's about time you got out of that funk."…Continue

Tags: inspiration, funk, rut, empowerment, depression

giving back

Started by kel in General. Last reply by whathappensinvegas 8 hours ago. 5 Replies

Boy, im on a roll today, better watch out, my brain is spinning and i am able to express myself today, i am going from up to down. I posted this on the fibrolyalgia forum as well so i am going to share it with you.a few days ago i was at a drive…Continue

where are you at

Started by kel in General. Last reply by wolfspirit 2 hours ago. 9 Replies

somebody posted something earlier today that got me to thinking, she talked about getting to the point where you mourn for yourself because you are ill. another talked about having lupus for many many years and still cant come to terms with what she…Continue

Lupus and Weight Loss Supplements

Started by Bethala55 in General. Last reply by Steinfadt1 14 hours ago. 5 Replies

I plan to talk to my rheumatologist about this, but I wanted to see if any of you have tried weight loss supplements after being dx with lupus? I was dx with lupus last year and was dx with ulcerative colitis 3 years prior to that.After 2 1/2 years…Continue

More problems!!!!

Started by Monica in General. Last reply by kel 8 hours ago. 5 Replies

I posted yesterday about my blood results coming back w my liver being very high! Well I know this is going to sound gross but today I've stated have pure blood clots coming out my nose, & I'm not sick an haven't been! Anyone know why this maybe…Continue

thyroid

Started by kel in General. Last reply by Bubbles 1 hour ago. 3 Replies

i was just wondering if anyone has a problem with enlargement of the thyroid gland, mine is (had ultrasound) but my blood test came back ok, i have a strong family history of thyroid problems and thyroid cancer. my grandmother, her sister, 2 of my…Continue

Latest Activity

Latina replied to lablover's discussion Seeing things!
"And we can do it. We are strong people. (well, most of the time...)"
21 minutes ago
Latina replied to kel's discussion question
"Yes, this keeps me quiet sometimes to avoid the embarrassment."
23 minutes ago
Latina replied to Tez_20's discussion Understanding Lupus & Autoimmune Diseases (Worth reading)
"I know. right? Maybe the opthalmologist can order the test instead...It was the Rheumy the one…"
29 minutes ago
Beverly L. replied to kel's discussion question
"Yes there are moments that we cry , but just keep the Faith that is within you and knowing that we…"
48 minutes ago
Beverly L. replied to MrsQ's discussion The worst flair I've had
"Hello, keep resting as much as possible , try to let a neighbour know to check on you from time to…"
57 minutes ago
Beverly L. replied to lablover's discussion Seeing things!
"Hi, well when Lupus came into my Life, I thought that things was crawling on me !! My nerves were…"
1 hour ago
Bubbles replied to kel's discussion thyroid
"Yes, I have had the same problem and I believe it is Lupus related...the only thing I found to help…"
1 hour ago
Beverly L. replied to auntpearl's discussion Who is this woman looking back at me in the mirror
"Hay aunt pearl, Don't beat yourself up thinking like that??! Even while Lupus has / trying to…"
1 hour ago

Top Content 

1 new here

new here

Posted by kel on May 19, 2013

2 flares

flares

Posted by kel on May 19, 2013

3 What do you like to do to occupy your time with?

What do you like to do to occupy your time with?

Posted by Ben Munoz on May 20, 2013

4 butterfly rash at night??

butterfly rash at night??

Posted by cayleigh on May 19, 2013

5 did it again!

did it again!

Posted by Ballerina8876 on May 17, 2013

6 Appointment and Update

Appointment and Update

Posted by Talencia on May 18, 2013

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