Life With Lupus - Online Support Group

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Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
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BaltimoreBaby
Auburnm
Purplebutterfly
Trisha
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Lynn

Groups

 

What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Many celebrities with lupus deal with the daily challenges of the disease as well.

Forum

I don't see any replies

Started by Teri Jackson in General. Last reply by ModSupport 13 hours ago. 1 Reply

I am looking through discussions and don't see many replies and i wonder why.Continue

New here, been lurking, newly diagnosed

Started by Eden Hall in Introductions. Last reply by lynn4545 on Thursday. 1 Reply

Hi everyone. I'm new here, but I have been watching and have commented on a topic or two.I was "diagnosed" a few weeks ago. I put that in quotations because my doctor kinda seemed to be trying not to diagnose me, but she started me on plaquenil to…Continue

SLICC

Started by Teri Jackson in Symptoms Apr 21. 0 Replies

Do you know any doctors who diagnose lupus with the SLICC lupus criteria? I found a new doctor and found that she does. Just in case here it is.NOTE: at the top of the page it says you don't have to have all criteria at one time just at some time.…Continue

Tags: criteria, SLICC

Dr. Sana Makhdumi

Started by Teri Jackson in Physician Recommendations (Positive Review Only) Apr 21. 0 Replies

If anyone in Georgia, specifically near Athens, Dr. Makhdumi is a new doctor in this area. She also goes by the new criteria. She is thorough and kind. I highly recommend her.

Latest Activity

Annie Viera left a comment for teacher2
"Hi teacher2, My name is Annie and I have lupus, SLE, for over 20 years.  With systemic lupus your normal cells that usually fight off foreign objects or infections turn around and attack my own healthy tissue.  In my case the antibodies…"
2 hours ago
freightliner replied to Mitze's discussion Can´t breathe today!
"I don't have any advice for you, I get the same thing.  I have pulmonary fibrosis.  It's not too bad yet.  I went to Stowe VT for a week and had trouble breathing but I thought it was the altitude.  Went to Pulmonary DR…"
2 hours ago
Madere (dancermom) left a comment for Renusha
"Hi, Renusha, it's nice to have you back. Feel free to open a discussion to let the community know how you have been and what you are up to."
4 hours ago
Heather replied to Allie's discussion Autoimmune paleo diet?
"I cant speak to Paleo but husband and I are on a Keto diet = very low carb and very low sugar.We have been on this diet since the new year and i have noticed that my 'bad days' are fewer and my energy level is the same or better.  It…"
5 hours ago

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Top Content 

1 Undiagnosed, steroids fix everything, too many pieces fitting together

Undiagnosed, steroids fix everything, too many pieces fitting together

Posted by Syn on April 8, 2016

2 New here, been lurking, newly diagnosed

New here, been lurking, newly diagnosed

Posted by Eden Hall on April 22, 2016

3 I don't see any replies

I don't see any replies

Posted by Teri Jackson on May 2, 2016

4 Autoimmune paleo diet?

Autoimmune paleo diet?

Posted by Allie on April 9, 2016

5 I know it's gross, but white poo anyone?

I know it's gross, but white poo anyone?

Posted by Steinfadt1 on September 30, 2015

 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

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Blog Posts

Iv injection

Posted by Che Che on May 1, 2016 at 2:38pm 0 Comments

Surviving In A Valley...

Posted by vrr1970 on March 3, 2016 at 12:26pm 0 Comments

To vape or not to vape

Posted by OtakuFighter on January 3, 2016 at 4:34pm 2 Comments

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