Welcome! You're not alone.

If your family has been affected by Lupus, consider Life With Lupus your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 




Need a Doctor or Specialist?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Community Moderators

 "To Know the Joy of Giving"                






Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

Please donate at our super easy Donation Page at Ben's Friends . A $5 donation will make a big donation. Everything is tax deductible!

We realize most members aren't in a position to donate. Those members can help by spreading the word about the fundraiser on the communities and on Facebook. 

We need your help to keep Ben's Friends alive and going strong!
We really need your help! Please donate, even if it's $5, that will really help.

(Co-Founder of Ben's Friend)

Don’t focus on your Disabilities, focus on the Possibilities

Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees.              Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!


Link between autism spectrum and auto-immune diseases?

Started by Petunia in General 3 hours ago. 0 Replies

I was speaking with a new friend who has a daughter with lupus.  She also mentioned that her grandchild (from her daughter) has autism.  Asperger's, I believe.  So I asked her if she thinks there is a link between the two, since I've heard of a few…Continue


Started by J in General. Last reply by J 5 hours ago. 9 Replies

My liver counts continued to be high for a couple of years, tried changing medications, gallbladder taken out.  It has been diagnosed as a fatty liver then my ANAs and CPR (?) went up over 130.They have decided I have lupus, I have not started any…Continue


Started by Grace in General. Last reply by purplebutterfly yesterday. 6 Replies

thinking of having a baby soon.just wanna know if anyone with lupus has had a baby and what you had to go through with the pregnancy. please let me know. it would really help.Continue

Elevated anti double staranded DNA antibodies

Started by USAGURL in General yesterday. 0 Replies

Have any of you had a severely elevated level of anti dsDNA antibodies? What were  your symptoms? What meds did the doc prescribe? What was your outcome.2 months ago my rheumy told me that my anti dsDNA antibodies were very elevated. She told me to…Continue

Tags: antibodies, anti-dsDNA

Hair loss

Started by Krista in General. Last reply by survivor4ever 20 hours ago. 8 Replies

Hi everyone! I am currently losing a lot of hair and it is really stressing me out. Does anyone recommend anything for it?Thank you.Continue

numbness on legs arms and face

Started by Mary in General. Last reply by Mary yesterday. 25 Replies

Hi everybody I need to know if anyone has experienced numbness on legs that runs up to your arm and then travels to your face to the point that it paralyzes you unable to walk and talk? This has happened to me for the last few days I thought maybe I…Continue

Mobile App and E-Book Available!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Julie liked Lupus In Color's blog post The Reality
36 minutes ago
Arlene Morales liked Arlene Morales's profile
1 hour ago
Arlene Morales updated their profile
1 hour ago

purplebutterfly left a comment for Sheila W.
"Sheila I hope things work out soon and you can find just the right place for you. Please let me know how things are going and if their is anything I can do from this far away I will. Hugs and prayers"
2 hours ago
Jon_sparky replied to Crystal 's discussion Fighting viruses
"I am going on a week and half now, so the flu will probably finish off, when I finish the antibiotics. It feels more like a sinus infection now, then the flu, my temp is back to it's normal erratic self. BTW I have one of those infrared Exergen…"
2 hours ago

purplebutterfly left a comment for Jeanie Street
"Hi Jeanie Glad you joined us. The settings tab will help control emails. "
2 hours ago

purplebutterfly left a comment for Arlene Morales
"Arlene Welcome  The settings tab will help you manage emails. You will find support, friendship and information here."
2 hours ago
Petunia replied to Crystal 's discussion Fighting viruses
"Hi Crystal, I'm sorry that your illness is hanging on for so long!  That's the pits!  So much harder when you have a hubby and kids to care for.  I am getting the flu right now, I think, after not getting it for many years…"
2 hours ago

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LifeWithLupus.org, Click an Ad. Or Two.

Blog Posts

The Reality

Posted by Lupus In Color on January 21, 2015 at 11:12am 6 Comments

accutane safe?

Posted by janelle on January 10, 2015 at 8:25pm 4 Comments

My cystic acne is so bad for four years now! Finally they agreed to put me on acutane. Any results for anyone??? Or heard anything?


BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No Solicitation
7. Please no personal e-mails in public forum or phone #'s
8. No sharing of members' posts to other sites without their express permission.
9. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted. 
Thanks for your cooperation.


© 2015   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service