Life With Lupus - Online Support Group

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Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
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Thanks for your cooperation.

Community Moderators

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BaltimoreBaby
Auburnm
Purplebutterfly
Trisha
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Lynn

Groups

 

What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Many celebrities with lupus deal with the daily challenges of the disease as well.

Forum

My introduction

Started by IAmGroot in Introductions 17 hours ago. 0 Replies

I am a 34 yr male. I got the positive blood test when I was 31, but the symptoms started a few years before that. I went to doctor after doctor, but none of them could tell me what was wrong. Finally, my primary basically gave up and started me on…Continue

New to LWL

Started by Ldysporster in Introductions on Monday. 0 Replies

I am a "bit" older than the normal demographics for a diagnosis of Lupus. But last month, during a hospitalization for what was first thought to be disseminated shingles (which was later proven not to be shingles), my ANA was 1:640.   I have had…Continue

Shows Positive Lupus but..........

Started by J in General Aug 19. 0 Replies

Question:I saw a new Rheumy this week, did lab work, ect.  The receptionist called today to tell me the results showed I was positive for lupus but in the normal ranges.Can someone explain what this means?I certainly don't feel like I am in…Continue

Long time Spoonie

Started by BookaholicSpoonie in Introductions Aug 12. 0 Replies

Hello lovelies!My name is Meghan and I have a nice little collection of conditions, the newest of which is DLE. I've been living with Sjogren's Syndrome since I was 15 (I'm 40 now) and mine is a more severe case. My tear ducts have been cauterized,…Continue

Tags: Spoonie, Fibromyalgia, DLE, lupus, Syndrome

Latest Activity

Profile IconACrane0219, Shellb and IAmGroot joined Life With Lupus - Online Support Group
3 hours ago
IAmGroot posted a discussion

My introduction

I am a 34 yr male. I got the positive blood test when I was 31, but the symptoms started a few years before that. I went to doctor after doctor, but none of them could tell me what was wrong. Finally, my primary basically gave up and started me on very strong pain meds that didn't really do anything for the pain. After that, I gave up on going to the doctor for 2 yrs. My wife convinced me to find a new primary. That doctor tested me for lupus and then I started seeing an RA. Over the past…See More
17 hours ago
Queenpink and purplelady are now friends
Tuesday
Profile IconMichelle Stout and Skinnerswife joined Life With Lupus - Online Support Group
Tuesday

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Top Content 

1 Hello

Hello

Posted by Andrea on July 25, 2016

2 Water blisters

Water blisters

Posted by Kellie on June 5, 2016

3 Personality Change/Mood Swings

Personality Change/Mood Swings

Posted by FL on August 8, 2016

4 Energy

Energy

Posted by Pat Bryan on February 23, 2016

5 New to this and what my possible future may be

New to this and what my possible future may be

Posted by apester40 on August 5, 2016

 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

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Blog Posts

Sneaky Secondary Conditions

Posted by Samaria on August 22, 2016 at 5:23pm 0 Comments

My Life

Posted by purplelady on August 11, 2016 at 12:35pm 0 Comments

What to eat

Posted by Cindy on August 1, 2016 at 10:39am 0 Comments

Need information

Posted by Sweetie Pie on July 25, 2016 at 6:17pm 0 Comments

pain

Posted by sandielouise on May 17, 2016 at 10:49pm 0 Comments

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