Welcome!!!

Welcome! You're not alone.

If your family has been affected by Lupus, consider Life With Lupus your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Members

Need a Doctor or Specialist?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Community Moderators

Events

 

Don’t focus on your Disabilities, focus on the Possibilities

Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees.              Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

Forum

What do you do when your family/friends say something hurtful?

Started by Idioskosmos in General 31 minutes ago. 0 Replies

Recently, my oldest and dearest friend from out of town came to visit for the first time since my diagnosis.  I was trying really hard to be "peppy" for her visit, and I thought I was doing a good job.   Towards the end of her visit, I was really…Continue

Parsonage Turner Syndrome

Started by Eagle41 in General 6 hours ago. 0 Replies

Aka brachial neuritis. Anyone else have this? I was just standing at work with no lifting etc and got a sudden severe sharp pain on upper right chest above breast under collar bone and into right shoulder/arm. At first I'm thinking it is the…Continue

a chemo drug gave me lupus

Started by perfectgams in General. Last reply by LupusRRJ 3 hours ago. 1 Reply

I need to know from someone who is knowledgeable if you get lupus from a chemo drug, and you get off the drug, would the lupus disappear?Continue

frequent cold sores?

Started by yabby02 in General. Last reply by Eagle41 7 hours ago. 2 Replies

At the risk of grossing everyone out, I'm wondering if anyone can shed some light on this. I've started getting frequent cold sores, but the last couple times I wondered if it's something more. When I was pregnant with my youngest, I got a cold sore…Continue

when did you see the rheumatologist?

Started by yabby02 in General. Last reply by Idioskosmos 43 minutes ago. 8 Replies

I was just wondering at what point did your regular doctor refer you to a rheumatologist? My sister and I both have been doing some tests (we have the same doctor) and I mentioned to her the other day that I was starting to wonder if I would do…Continue

Up and down

Started by Thomas Franklin in General. Last reply by catspaw1955 4 hours ago. 5 Replies

   After the day I experienced today, I had to ask the question: Do any of you with lupus or interstitial lung disease (I suffer from both) ever begin the day in horrible pain or discomfort, wondering if you will accomplish the simplest thing or…Continue

Mobile App and E-Book Available!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Idioskosmos replied to yabby02's discussion battling fatigue??
"I have a 17 year old, a 10 year old, and a 9 year old.  At the height of my symptoms, I was in bed for days at a time.  My husband tried to keep up with the household but just couldn't do it.  The laundry piled up, the sink was…"
23 minutes ago
Idioskosmos posted a discussion

What do you do when your family/friends say something hurtful?

Recently, my oldest and dearest friend from out of town came to visit for the first time since my diagnosis.  I was trying really hard to be "peppy" for her visit, and I thought I was doing a good job.   Towards the end of her visit, I was really…See More
31 minutes ago
Idioskosmos replied to yabby02's discussion when did you see the rheumatologist?
"I was in the hospital for something else in February of this year, and the emergency room doctor asked me if I was "the one with Lupus and Sjorengen's Syndrome".  I said no, because I had no idea what he was talking about. …"
43 minutes ago
Calla Lilly commented on Calla Lilly's blog post Neurologist and Gastrologist
"Holding onto hope....so nice to know somebody else that lives close by that has some of the same issues as I do.  You had mentioned the flushing to Louise I am not sure what causes it but my heat tolerance has seem to diminish and when I eat…"
2 hours ago
LupusRRJ replied to perfectgams's discussion a chemo drug gave me lupus
"Some Chemo drugs are used to treat Lupus. I've had two sets of infusions with drugs that usually treat cancer. The one I just came off of Rituxan will take up to six months before I will see results."
3 hours ago
LupusRRJ replied to yabby02's discussion when did you see the rheumatologist?
"I did not really answer your question did I. Tell your doctor that you would like to get an opinion of a Rheumatologist, especially  if you are having complication. To find a good one? Your guess is as good as mine. My Rheumatologist and…"
3 hours ago
freightliner replied to yabby02's discussion battling fatigue??
"Hi You need a referral from your dr if your insurance co requires it. I have medicare, no referral required. Cindy"
3 hours ago
freightliner replied to yabby02's discussion battling fatigue??
"You have to all work together "
3 hours ago
 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LifeWithLupus.org, Click an Ad. Or Two.

Photos

Loading…

Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:36am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

thankyou both very much.  I knew I wouldn't sleep and of course I didn't.   I will try the melatonin. To think I have a month of this to go through.  Also found out I have inflammation around the lin…

Posted by karen vaicels on October 25, 2014 at 8:00am 0 Comments

thankyou both very much.  I knew I wouldn't sleep and of course I didn't.   I will try the melatonin. To think I have a month of this to go through.  Also found out I have inflammation around the lining of my lungs too.  that's why Ive…

Continue

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No Solicitation
7. Please no personal e-mails in public forum or phone #'s
8. No sharing of members' posts to other sites without their express permission.
9. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted. 
Thanks for your cooperation.
 

About

© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service