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Don’t focus on your Disabilities, focus on the Possibilities

Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees.              Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!


coca cola?

Started by yabby02 in General. Last reply by catspaw1955 6 hours ago. 21 Replies

ok, so this is probably going to sound like the most hair-brained crazy question ever :)But can drinking Coke cause a flare? I used to love coke! Never drank it very much, but on occasion it would just hit the spot :) But after awhile I started…Continue

Flu shot

Started by Jinx in General. Last reply by Stacey 2 hours ago. 25 Replies

Does any one have symptoms from the flu shot? I feel horrible. I know it's not a live virus but I do think it is making me feel awlful.

Tags: shot, Flu

Dating with Lupus

Started by LupusRRJ in General. Last reply by lynn4545 18 hours ago. 20 Replies

What do you tell a potential date when they ask what you do for a living, when you are on disability and have been chronically ill for the last past years?Continue


Started by rebeccainla in General. Last reply by rebeccainla 18 hours ago. 11 Replies

Well I went to the dr today, I have to use a public hospital so I see students. My dr basically couldn't give me the official diagnosis because his attending wouldn't do it.  They are going to send me to rhuematology.  That could be next year before…Continue

Daily Living

Started by Louters in General. Last reply by hopeful 1 hour ago. 21 Replies

So I am working on an ethnography paper for my comp. class and so I am wondering what is a normal day for you all? What do you do? How do you use your "spoons"? What do you use to help you get through the day? Or anything you would like to add.…Continue

SSDI /disability

Started by asiangirl in General. Last reply by hopeful 9 minutes ago. 13 Replies

Would love to hear from my fellow lupies.. I finally decided to go on disability. I talked with my pcp and my rheumy and told them that I just couldn't do this anymore (work). My pcp told me that she understood, that I have been having such a time.…Continue

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Latest Activity

hopeful replied to asiangirl's discussion SSDI /disability
"I applied at age 43, had by that time a massive stroke, lupus with organ damage including heart, lungs, liver and a host of other problems  not to mention 27 seperate hospitalizations in 2 years,with 7 specialists writing letters on my behalf…"
9 minutes ago
hopeful replied to Louters's discussion Daily Living
"catspaw1955 thank you for the kind words and encouragement somedays are just harder than others, I'm so glad I found this site at least here everyone understands the struggle I've with all these years. "
1 hour ago

John "JC" Colyer left a comment for moonbeam
"Welcome ,  you will connect with good people here that will give you support and  information , stay strong!"
2 hours ago
moonbeam is now a member of Life With Lupus - Online Support Group
2 hours ago
Stacey replied to Jinx's discussion Flu shot
"It made me laugh too Mugs. Hope your meds kick in soon."
2 hours ago
MUGS replied to Jinx's discussion Flu shot
3 hours ago
MUGS replied to Jinx's discussion Flu shot
"Funny how I found the subjet of flu shit reactions when I logged on. Im up now waiting for tylenol, zofran & flexuril to kick in. Gnite Lupies. Mugs in California (Its 1:04 am here). Im never up tjis late."
3 hours ago
MUGS replied to Jinx's discussion Flu shot
"Better to feel like crap a few daya than risk flu. I too had injection. Body aches, fever, fatigue w/ nausea. But Like I said... Whew, I had the H1N1 2 yrs ago. Id rather feel achey etc... for 3 days than in bed 2 wks. I too always only get non live…"
3 hours ago

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Blog Posts

just wanted to vent some about lupus, do any of you guys and gals get depression from the lupus?

Posted by catspaw1955 on October 16, 2014 at 4:43pm 12 Comments

i have severe depression, i take 3 different antidepressants a day, cymbalta, olanszapine, and lamactil, sometimes i get a pain in my face or somewhere else, and i am afraid…


does anybody feel all alone with lupus?

Posted by catspaw1955 on October 14, 2014 at 9:02pm 6 Comments

some times   i feel so terribly alone, having lupus is like haviing aids, people act like that at least, there is no one here at my house that i can talk about it with, i just get so…



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