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If your family has been affected by Lupus, consider Life With Lupus your second home.


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Don’t focus on your Disabilties, focus on the Possibilities

Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees.              Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!


First Visit to Rheumatologist

Started by Idioskosmos in General. Last reply by lizluvsu 14 minutes ago. 3 Replies

I'm about to leave for my first visit to the Rheumatologist.  I'm excited because something is happening that may improve my life, but I'm also really scared. What if I officially have Lupus? What if it's something even worse? What if the medication…Continue

a blog post got me to thinking

Started by hopeful in General. Last reply by Liz1049 3 minutes ago. 4 Replies

A recent blog post about support from family and friends got me to thinking about my own situation, and I wondered if any of you ever felt or suspected that your support system, spouse, family, friends could be just burned out. We hear about burn…Continue

portal hypertension

Started by Rachel in General. Last reply by Ann A. 16 hours ago. 1 Reply

Just got my results from my CT Scan. Says I might have portal hypertension. Does anyone know anything about this diagnosis.? I have another liver biopsy scheduled next week to see about cirrhosis of the liver. Worried.

weakness in thighs

Started by sandra marchant in General. Last reply by delia quintanilla 21 hours ago. 6 Replies

I have been diaganosed with sle lupus and my thighs are the wort too.I had a muscle biopsy b4 I was diagnosed and it showed nothing but my knees are weaki also they always buckle under me so I walk with George my stick.I don't believe I'm vit. d…Continue

Doctor visit

Started by Thomas Franklin in General. Last reply by Thomas Franklin 7 hours ago. 5 Replies

Had a long day at doctor but at least had no negative news after a detailed catscan of my lungs. My pulmonary guy read results of scan and reported that my interstitial lung disease has not worsened. It's not better, but it's not worse. Have to…Continue

And I've just told him i have lupus...

Started by Gehlay in General. Last reply by sweetiepie65 19 hours ago. 9 Replies

Really starting to like this guy... And i know that he likes me too... Today i have just shown him what having lupus really looks like... Yes i've shown him some of my medical files and photos. I could regret this forever or i could just be hopeful…Continue

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Latest Activity

Liz1049 replied to hopeful's discussion a blog post got me to thinking
"I see it as well. I was diagnosed 8 years ago, a year after we were married. My husband has been so…"
3 minutes ago
lizluvsu replied to Idioskosmos's discussion First Visit to Rheumatologist
"Your getting ahead of yourself. Worrying about things may not be noting. Don't worry, God is…"
14 minutes ago
foreverhopeful replied to hopeful's discussion a blog post got me to thinking
"yes i have seen it in my grown daugters,they cry with me when im having a bad day,which ive had…"
38 minutes ago
Aria replied to Idioskosmos's discussion First Visit to Rheumatologist
"Good luck I'm going true the same thing my self I hope for good news for you"
39 minutes ago
Aria liked Idioskosmos's discussion First Visit to Rheumatologist
41 minutes ago
Jwalkergraham replied to Idioskosmos's discussion First Visit to Rheumatologist
"Gah! You are reading my mind ... I had my first appointment July 1, and it just raised more…"
47 minutes ago
MT411 commented on sandra marchant's blog post No Title
"I was on Plaquenil for about two years before I even noticed a difference.  The changes are so…"
1 hour ago
Idioskosmos's discussion was featured

First Visit to Rheumatologist

I'm about to leave for my first visit to the Rheumatologist.  I'm excited because something is…See More
1 hour ago

Top Content 

1 I don't want to be this sick!

I don't want to be this sick!

Posted by Idioskosmos on July 12, 2014

2 Gluten - How did you learn that gluten was part of your problem and what is better after removing it from your diet?

Gluten - How did you learn that gluten was part of your problem and what is better after removing it from your diet?

Posted by Ann A. on July 3, 2014

3 Need an opinion .. For having children ...

Need an opinion .. For having children ...

Posted by Aria on July 16, 2014

4 One Big Hive!

One Big Hive!

Posted by Kaykay on June 27, 2014

5 Looking for some advice

Looking for some advice

Posted by Kelly on July 15, 2014

6 When to Tell Your Child You Have Lupus?

When to Tell Your Child You Have Lupus?

Posted by Kim on June 29, 2014

7 Can't Sleep

Can't Sleep

Posted by Elita on July 8, 2014

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Blog Posts

Spousal and Friend Support...

Posted by Michelle Walker on July 23, 2014 at 8:02pm 11 Comments

Does anyone have problems with their spouses not giving a hundred percent support? Or even friends? I know it has to be hard on them because of the unknown. However I get the constant feed back that I'm giving in and/or I'm on to many meds. I've… Continue

Anger on the procedure table - Spine clinic adventures

Posted by Ann A. on July 23, 2014 at 10:30am 1 Comment

So today I lost it on the procedure table at spine clinic. I was there for a radiofrequency ablation L5-S3. The new doc and I are still getting to know each other. He goes heavy on the anesthetic so I don't feel much pain.  He keeps repeating, "Let… Continue


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