Life With Lupus - Online Support Group

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Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Join or Create a Group

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To maintain your privacy in a google-y universe, please do not use your real-life name.

Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD, LLB, Dr, MSW, Sr, Dame, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here. 

Disclaimer

All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, please.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

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BaltimoreBaby
Auburnm
Purplebutterfly
Trisha
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Lynn

Groups

 

What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Many celebrities with lupus deal with the daily challenges of the disease as well.

Forum

helloooooo

Started by TAZJones in Emotional Support. Last reply by Queenpink May 23. 2 Replies

I am Tracy, and I am newly diagnosed with Lupus, Celiac Disease and Diabetes. I worry about my eyes, they are drying out; but thankfully no damage. I'll see my Rheumatologist (Love Him) tomorrow. I know how hard it is, and I understand alone. I was…Continue

Multiple Sclerosis and SLE

Started by Mary in General. Last reply by Sheila W. yesterday. 8 Replies

Hi everyone I haven't been here in a while I was diagnosed with Multiple Sclerosis in November 2015 after being hospitalized for a week. I know I have asked before about any of you successfully having a baby while having Lupus but now with also…Continue

Another new one...

Started by Madcat1776 in Introductions. Last reply by Queenpink May 23. 8 Replies

Hi All,I am newly diagnosed and very uneducated about this disease.  I am also unfamiliar with this website, so I am not sure if anyone is actually reading this (lol).  If anyone comes across me will you please tell me where to go to meet people or…Continue

I don't see any replies

Started by Teri Jackson in General. Last reply by TJ1 May 6. 5 Replies

I am looking through discussions and don't see many replies and i wonder why.Continue

Latest Activity

Sheila W. replied to Mary's discussion Multiple Sclerosis and SLE
"Hi again Mary,      The birth problems are random and don't happen with every birth. It has nothing to do with whether the baby is a boy or girl because it's YOUR lupus that causes the problem, not lupus in the baby. If you…"
yesterday
heytiff is now a member of Life With Lupus - Online Support Group
Wednesday
Idioskosmos replied to Mary's discussion Multiple Sclerosis and SLE
"I was diagnosed with Lupus in 2009, and had my two healthy babies in 2003 and 2005.  Obviously, I did not know I had Lupus at the time (and the pregnancy may have triggered the Lupus).  I was so sick with the first baby that I almost…"
May 23
Idioskosmos replied to Idioskosmos's discussion I would rather have cancer
"Seenie, I re-read your post today and I wish I could give you a hug!  "
May 23

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Top Content 

1 Another new one...

Another new one...

Posted by Madcat1776 on May 5, 2016

2 I don't see any replies

I don't see any replies

Posted by Teri Jackson on May 2, 2016

3 Multiple Sclerosis and SLE

Multiple Sclerosis and SLE

Posted by Mary on May 11, 2016

4 social isolation

social isolation

Posted by mqb on February 6, 2016

5 Autoimmune paleo diet?

Autoimmune paleo diet?

Posted by Allie on April 9, 2016

 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

LifeWithLupus is a peer-to-peer network

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Blog Posts

pain

Posted by sandielouise on May 17, 2016 at 10:49pm 0 Comments

Iv injection

Posted by Che Che on May 1, 2016 at 2:38pm 0 Comments

Surviving In A Valley...

Posted by vrr1970 on March 3, 2016 at 12:26pm 0 Comments

To vape or not to vape

Posted by OtakuFighter on January 3, 2016 at 4:34pm 2 Comments

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