Life With Lupus - Online Support Group


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What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.


Plaquenil Dosage

Started by Michelle in General. Last reply by mdaniels3 1 hour ago. 2 Replies

Good Morning,  hope all is well with everyone.  I've been taking Plaquenil for about 5 months now.  I was moved up to 400mg and I was taking the full dose at once at bedtime.  Well after reading something I realized its 200mg twice a day.... So…Continue

help for a grumpy old grandma

Started by Sharon in General. Last reply by TAZJones 5 hours ago. 3 Replies

Hi Everyone.  I was diagnosed a year ago with Lupus and it's been a challenging year as you all know.  My symptoms are joint & muscle pain along with fatigue & brain fog.  I am trying to not let it get the best of me & I can deal with…Continue

Natural Remedies for RA

Started by Bubbly in Complementary Therapies. Last reply by RachelSara Aug 18. 1 Reply

Hi All,Just listened to an interesting clip about using natural remedies to curb RA. I battle on a daily basis with my right knee and ankle. Almost every night my hubby gives me a massage with a pain cream to help me settle for bed.So according to…Continue

Members: Opportunity to Advance Lupus Research through Sanguine, a Ben's Friends partner

Started by Madere (dancermom) in General Aug 14. 0 Replies

Members, please read below. From time to time, Ben's Friends learns of opportunities that may aid in research efforts and may help develop new treatments for members on our communities. We may occasionally present these opportunities to the forum,…Continue

Lupus and brain drain

Started by Bubbly in General. Last reply by reddog on Monday. 16 Replies

Hi All,Can you relate to the brain drain that comes with lupus? I can best describe it as feeling as though I'm going  into a sword fight with my butter knife. I feel dull, and the  times when my brain has a "light" moment are rare! Wish I could…Continue

Lupus and depression

Started by Bubbly in General. Last reply by Bubbly Aug 13. 4 Replies

Hi Loopies,I haven't posted on this forum for a while now. I have been having a hard time with flares recently. Plus I've found that the added stress of having to "prove" to loved ones that I'm feeling ill is starting to take its toll on me. I have…Continue

Latest Activity

mdaniels3 commented on Sheila W.'s blog post Tough Times, but being strengthened
"Praying for you! You're smart in taking things hour by hour. Don't be afraid to take a break or ask for help when you need it. If there's anything I can do for you, please don't hesitate to let me know."
1 hour ago
mdaniels3 replied to Michelle's discussion Plaquenil Dosage
"My rheumatologist prescribed for me to take it twice a day, and I noticed the bottle also says to make sure I take it with food. Have you tried taking it with/without food to see how it reacts with you? I hope you're feeling better and I hope…"
1 hour ago
mdaniels3 updated their profile
1 hour ago
TAZJones replied to Sharon 's discussion help for a grumpy old grandma
"Hi Sharon,  I understand your position. I am going to be a Grandma for the first time!!  I am very excited. HOwever, I am always tired. I work full time. It helps keep me out of my depression. I do get really sore and swollen on the busy…"
5 hours ago
Rose replied to Rose's discussion Having a very rough day today.
"I know about the work thing for sure, but I also realize that if I'm not reliable at work, what do they need me for? The work needs to get done, so I guess sucking it up and forging ahead is the only answer."
8 hours ago

Starr commented on Sheila W.'s blog post Tough Times, but being strengthened
"So sorry Sheila, we are all thinking of you and sending hugs your way. <3 Starr"
Sam is now a member of Life With Lupus - Online Support Group
Cathy In MD replied to Niki B's discussion Flare up help
"Becka, I have dealt with the same kind of doctor.  I have an appointment with a new doctor.  I can't get in until December but if he listens, it will be worth it. Cathy In MD  "

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Top Content 

1 Tough Times, but being strengthened

Tough Times, but being strengthened

Added by Sheila W. on August 22, 2015

2 Weight Gain

Weight Gain

Posted by Michelle on August 10, 2015

3 Lupus and brain drain

Lupus and brain drain

Posted by Bubbly on August 13, 2015

4 Any ideas?

Any ideas?

Posted by Wolf1029 on July 31, 2015

5 Hair loss

Hair loss

Posted by Samantha on July 22, 2015


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Blog Posts

Tough Times, but being strengthened

Posted by Sheila W. on August 22, 2015 at 5:13am 6 Comments

My Mom and brother died last week. So difficult. So much needs done ASAP, but I do feel God strengthening me a bit more than my usual strength, and comfort, and so many things put into pace that it's too much to be coincidence. It's like He's…


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