Life With Lupus - Online Support Group

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All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
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Dancermom
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What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.


Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.


Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Forum

Osteperosis

Started by Vegas Girl in General 18 hours ago. 0 Replies

Hello fellow lupies been awhile since the site changed formats I havnt posted. So been in hospital twice since last year for breathing issues oxygen and iv stuff and week later I was home ok today I wanna ask if anyones using fairly new drug called…Continue

I am back because something more than fibro seems to be happening

Started by Petunia in General. Last reply by J 9 hours ago. 8 Replies

Getting and managing fibro has been hard enough, as so many of you know. But this past summer has been pretty awful.  I am now suffering from severe knee pain plus I am having a harder time catching and keeping my breath.  I just feel utterly…Continue

celebrating

Started by Doggie in General. Last reply by Kenbow 10 hours ago. 7 Replies

I know it doesn't sound like much but I am now allows to walk from my dining room table to my desk and back twice a day. That is about 10 feet both ways.  I have to admit it wears me out but at least I get to walk.Continue

Work, Bills, Life

Started by Doolittle in Emotional Support. Last reply by Doggie on Saturday. 4 Replies

Permalink Reply by…Continue

Disability

Started by Nikki major in General. Last reply by dawncelest yesterday. 2 Replies

I've recently had to stop working due to complications. Our savings have taken a big hit & we are struggling with dr. Bills. Does anyone know of any assistance? SS disablilty denied me & I can't find a lawyer to take my case. Does anyone…Continue

Naltrexone

Started by Julie in Complementary Therapies. Last reply by Madere (dancermom) 21 hours ago. 1 Reply

I saw a new doctor today and while she said it wouldn't be easy she thinks she can get me back into remission. ( I have been having severe GI issues for the last 2 years) she wants me to cut out all wheat and dairy for the next ten days to see if…Continue

Latest Activity

JayNicole replied to Tarra's discussion Mouth and throat sores
"I had mouth sores (even down my whole throat) so bad I was in the hospital for almost 2 weeks and couldn't eat. Since then, I have been prescribed Famiclovir to take when I have flares of this. It's the only thing that has worked-it's…"
12 minutes ago

Moderator
lynn4545 and Renusha are now friends
41 minutes ago
J replied to BaltimoreBaby's discussion Hints and Tips
"Great ideas!"
9 hours ago
J replied to Petunia's discussion I am back because something more than fibro seems to be happening
"Ann A, you sound a lot like me.Temp changes and weather trigger something in my sinus/ear area that will quickly change to bronchitis or pneumonia if I don't get to the Urgent Care for a cortisone shot.  It seems that this happens every…"
9 hours ago
Sophia liked BaltimoreBaby's discussion Hints and Tips
9 hours ago
Kenbow replied to Doggie's discussion celebrating
"Congratulations on your progress, I hope you get to reach your goals as soon as possible! Keep up the good work"
10 hours ago
Doggie replied to Doggie's discussion celebrating
"Yes Shelia I have a prosthetic.  A year ago I walked a quarter mile in a Boy Scout marathon to raise money for my grandson's troop.  I was the top money raiser even though I only walked the  quarter mile instead of the whole half…"
13 hours ago
Ann A. replied to Petunia's discussion I am back because something more than fibro seems to be happening
"PS - people who do not get a skin reaction to sunlight and other sources of UV often have a difficult time connecting their UV exposure to their nonskin lupus symptoms.  References on this issue are available.  "
16 hours ago

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Top Content 

1 Communication is Hard

Communication is Hard

Posted by MT411 on June 12, 2015

2 im still new at this lupus disease

im still new at this lupus disease

Posted by sissy on June 10, 2015

3 applying for disability

applying for disability

Posted by zebamber on June 9, 2015

4 Recently diagnosed

Recently diagnosed

Posted by Bruin714 on June 30, 2015

5 Fed Up with the Medical System: Call to Action

Fed Up with the Medical System: Call to Action

Posted by MT411 on June 9, 2015

 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

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NEWSLETTER

Blog Posts

Watch out for toxic incredients in sunscreens!

Posted by Lupus Warrior #711 on June 23, 2015 at 9:01pm 0 Comments

Like most of you, I need to wear sunscreen all the time. I was using one that claimed to be for sensitive skin and "recommended by dermatologists." It had no odor and felt soothing on my skin so I thought it was fine. However, I noticed my malar… Continue

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