Welcome!!!

Welcome! You're not alone.

If your family has been affected by Lupus, consider Life With Lupus your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Photos

Loading…

Members

Need a Doctor or Specialist?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Community Moderators

Events

 

Don’t focus on your Disabilities, focus on the Possibilities

Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.

Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees.              Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!

Forum

hip pain

Started by Michelle in General. Last reply by Jon_sparky 16 minutes ago. 1 Reply

I was diagnosed with Lupus just a few weeks ago. I've been very sick all year. My hips are killing me I'm in so much pain, and I have zero energy. I can't see the specialist until Jan. My family dr gave me an anti inflammatory but not helping at all…Continue

FIRST RHEUMY VISIT

Started by Brittany in General 4 hours ago. 0 Replies

Ok had my first visit with the rheumy went over everything...he noted that my first Ana test was negative for lupus but he ordered another test because he said it could change because I'm in the early stages...had a hip injection of steroid boy did…Continue

Is it the medication or just a lull in the disease?

Started by Jon_sparky in General. Last reply by Jon_sparky 21 minutes ago. 13 Replies

Hi,I have been feeling better, I am on my 4th month of hydrooxyclorquine, just wondering how I can tell if I am doing better, or just in between flares? I guess, only time will tell, that is why my Rheumy doesn't want to see me until the 6month…Continue

Steroid Weight Gain :-(

Started by Lauren in General. Last reply by freightliner 11 hours ago. 6 Replies

Feeling very blue today. Stepped on the scale (stupidly) for the first time after my 2 rounds of steroids and almost 3 month flare. I was shocked when I looked down to see that I had gained a whopping 20lbs! That's enough to make you cry! I've been…Continue

Morning brain freeze

Started by Thomas Franklin in General. Last reply by Jane S. 11 hours ago. 10 Replies

   I have recently been suffering from the same morning shutdown of the brain a lot of people have been talking about on here. It is hard to explain but very disturbing. I wake up and immediately have trouble focusing my attention on anything. For…Continue

IBS and Lupus...

Started by Desiree stogden in General. Last reply by Flygirl yesterday. 24 Replies

About two months ago I was hospitalized for intense abdominal cramps...doctors ran a million test only to find out that I was clogged up. As embarrassing as it was I admitted that I have gone days without going to the bathroom. My intestines almost…Continue

Mobile App and E-Book Available!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Jon_sparky replied to Michelle's discussion hip pain
"Did you get the ANA blood test, or is it your symptoms that he is diagnosing as Lupus? If he has diagnosed you, why not get you started on a anti-malarial drug, they will start people on it even if they suspect Lupus. Good luck!"
16 minutes ago
Jon_sparky replied to Jon_sparky's discussion Is it the medication or just a lull in the disease?
"It kind of shows how little that doctor understood about SLE, and the treatment, that would be similar to reducing a anti depressant because the person didn't feel depressed anymore... The way I understand the SLE treatment with Quinine type…"
21 minutes ago
Michelle updated their profile
1 hour ago
Michelle posted a discussion

hip pain

I was diagnosed with Lupus just a few weeks ago. I've been very sick all year. My hips are killing me I'm in so much pain, and I have zero energy. I can't see the specialist until Jan. My family dr gave me an anti inflammatory but not helping at all…See More
1 hour ago
Creecie Morgan commented on nancy's blog post malaria med
"I am on plaquenil and methotrexate and they help but you can still go into a flare I know I'm in one my doctor almost admitted in hospital im hurting so he didn't admit because of thanksgiving please keep me in your prayers thank you"
2 hours ago
Creecie Morgan liked nancy's blog post malaria med
2 hours ago
Angelkk508@aol.com liked MichelleM87's blog post Trapped inside my body..
2 hours ago
Brittany posted a discussion

FIRST RHEUMY VISIT

Ok had my first visit with the rheumy went over everything...he noted that my first Ana test was negative for lupus but he ordered another test because he said it could change because I'm in the early stages...had a hip injection of steroid boy did…See More
4 hours ago
 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LifeWithLupus.org, Click an Ad. Or Two.

Blog Posts

Trapped inside my body..

Posted by MichelleM87 on November 25, 2014 at 9:28am 4 Comments

Hi Everyone,

My name in Michelle. I have been suffering from Lupus for just over a year now. I am finding myself getting more and more frustrated. My mind and spirit want to get out and do things. Or even stay in and do things. But my body… Continue

New rheumy and blood work show no sign of lupus, so confused

Posted by Willow on November 22, 2014 at 11:59am 6 Comments

I've been diagnosed with Lupus Sle and for the last two years my blood work came in positive for it both years. High ANA, ds-DNA high cholesterol, high sugar and

now it's all negative. I'm glad but confused. The tests were done in Lab Corp a… Continue

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No Solicitation
7. Please no personal e-mails in public forum or phone #'s
8. No sharing of members' posts to other sites without their express permission.
9. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted. 
Thanks for your cooperation.
 

About

© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service