Welcome! You're not alone.
If your family has been affected by Lupus, consider Life With Lupus your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.
To change username, click here.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Lupus is a systemic autoimmune disease which affects any part of the body, including the skin, lungs, heart, liver, kidneys, and nervous system. The immune system attacks the cells and tissues of the body, resulting to inflammation and tissue damage.
Symptoms of lupus vary from person to person, and may come and go. Almost everyone with Lupus has joint pain and swelling. Some develop arthritis. Frequently affected joints are the fingers, hands, wrists, and knees. Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!
Hello everyone,I have had lupus for the past four years.Intermittently, I am noticing pain in my scalp. I cant really explain the pain. It seems superficial to the skin and oh god it hurts to even touch my scalp, let alone run a comb. I talked to my…Continue
I've been getting these really awful headaches recently. They hurt so bad I'm unable to even function. Anyway I was recently admitted to the hospital and the doctor mention that I may have MS in addition to Lupus. I have a specialist appointment in…Continue
Benlysta (belimumab): A New Lupus Medication that my doctor has recommended me to take. I was wondering has anyone else tried this new drug, and what do you think of it. He thinks it will help with the medicine I already take, and that I would be…Continue
I have lupus/sjogrens but he doesn't think that is causing those symptoms. I'll now be seeing a neurologist. Can't lupus/sjogrens causes those symptoms though? I can't imagine having the chance of some other random disease but maybe it's another…Continue
Has anyone had this problem? I do and it's driving me nuts! Any comments are appreciated. Sometimes I wonder if I have MS and Lupus but have been tested (MRIs twice of brain)...Who knows...maybe it is a spinal issue. I have been off this…Continue
Hello Everyone, I have a question does anyone else bruise easily? I have been noticing lately that i bruise very easily I am on Imuran 150 mg and prednisone, for example Wed morning I woke up with a huge bruise on my hand I have no clue where it…Continue
Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.