Life With Lupus - Online Support Group

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All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
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Thanks for your cooperation.

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Please send a private message to a moderator.

== ==
Dancermom
Smiley
BaltimoreBaby
Auburnm
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What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.


Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.


Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.

Forum

A Chance to Help Your Ben's Friends Support Community

Started by Auburnm in General. Last reply by BaltimoreBaby 2 hours ago. 1 Reply

As you may or may not know Ben's Friends actually sponsors over 30 communities like this one, as well as number of Facebook sites.  Our sites have grown to serve thousands of folks like you each month. With growth comes change. One issue that is…Continue

How have you kept going when doctors have told you it's in your head?

Started by LMidg in Emotional Support. Last reply by elfin66 15 hours ago. 1 Reply

All I want to to right now is run away deep into the woods where there's a nice cabin and SOLITUDE. I don't want to see another darn hospital unless I'm a there as a medical student (one can dream...) I'm in horrible amounts of pain right now --…Continue

depression

Started by elfin66 in General. Last reply by elfin66 14 hours ago. 2 Replies

Hello and good day to everyone.  I hope today finds you having a lower pain or painless day.  I have been wondering for sometime now if depression is a huge factor for us fighting such a daunting battle with this ever changing disease?  How do you…Continue

Frustrated

Started by Tonya in General. Last reply by Tonya yesterday. 6 Replies

So, rheumatoligist appointment todaySecond one. Last appt he wanted more tests. Low positive lupus he said, but with the problems he was going to treat.Today, he checks me for fibro. I'm not an idiot, he's done the trigger points twice. Pain is not…Continue

sweating all tge time

Started by MICHELE LEE FISH in General. Last reply by Vette on Tuesday. 5 Replies

Does anyone else have a hot feeling body? I sweat so much I can't stand it !Continue

Top Content 

1 Now we know what is wrong but have nothing to treat you with.  Brain fog too.

Now we know what is wrong but have nothing to treat you with. Brain fog too.

Posted by Doggie on May 15, 2015

2 Newbie!

Newbie!

Posted by Lacey on May 6, 2015

3 Hi from Doggie

Hi from Doggie

Posted by Doggie on May 13, 2015

4 Lupus Fact Images For May!

Lupus Fact Images For May!

Posted by Talencia on May 1, 2015

5 Back pain

Back pain

Posted by jdt on April 30, 2015

Latest Activity

PoohP replied to Tarra's discussion Fever and increasing ache
"I too get a low grade fever and achy by late afternoon. My husband thinks it is because he comes home from work ;) I assured him that was not the case. I have done this for years but was only diagnosed 9/14.  Sunlight affects me too. I am still…"
24 minutes ago
Taylor posted a blog post

Ive been having more panic attacks since I've been diagnosed and its truly frustrating! Like for instance today... I was doing a little wedding planning but I couldn't make a decision & get to worked…

Ive been having more panic attacks since I've been diagnosed and its truly frustrating! Like for instance today... I was doing a little wedding planning but I couldn't make a decision & get to worked up I tend to feel sick (nauseous, headache, and sometime mild spasms) so I asked my fiancee for a little advice (what did I do that for) he got upset about the location of the wedding, which by the way was never the location, then he started saying crazy stuff I guess to make me shut up but it…See More
4 hours ago
Doggie replied to Doggie's discussion Hi from Doggie
" Thank you elfin. "
4 hours ago
Taylor replied to Taylor's discussion can lupus really cause dyslexia?
"Honestly Im not sure I Google search and like a tune of things pop up so I start clicking..."
4 hours ago

Moderator
Auburnm's discussion was featured

A Chance to Help Your Ben's Friends Support Community

As you may or may not know Ben's Friends actually sponsors over 30 communities like this one, as well as number of Facebook sites.  Our sites have grown to serve thousands of folks like you each month. With growth comes change. One issue that is facing us is we need to change our forum platform. We are getting great support financially from a number of our partners and we are trying to expand that base. One thing that would help is if you folks could go to…See More
8 hours ago

Moderator
Auburnm posted a discussion

A Chance to Help Your Ben's Friends Support Community

As you may or may not know Ben's Friends actually sponsors over 30 communities like this one, as well as number of Facebook sites.  Our sites have grown to serve thousands of folks like you each month. With growth comes change. One issue that is facing us is we need to change our forum platform. We are getting great support financially from a number of our partners and we are trying to expand that base. One thing that would help is if you folks could go to…See More
8 hours ago
geneva21 replied to Jennifer's discussion sensitivity to light
"I wear shirts that have sun protection in them and they really work.  I get them from Land's End and Solumbra.   I even can swim with the shirts on!"
10 hours ago
Seahawk12 replied to Ann A.'s discussion Tramadol Will Be Next
"I Watson Tramadol for almost a year, at first it took a bit of the edge off, but then the doc had to keep increasing the dose and it eventually became less effective"
13 hours ago
 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region.

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Events

Blog Posts

Ive been having more panic attacks since I've been diagnosed and its truly frustrating! Like for instance today... I was doing a little wedding planning but I couldn't make a decision & get to worked…

Posted by Taylor on May 29, 2015 at 4:05am 0 Comments

Ive been having more panic attacks since I've been diagnosed and its truly frustrating! Like for instance today... I was doing a little wedding planning but I couldn't make a decision & get to worked up I tend to feel sick (nauseous, headache,… Continue

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