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May 2012 LifewithLupus Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 6:54am 0 Comments 0 Likes
Dear Friends and Family of LifewithLupus,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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John Hopkins Memo-Screen All Kids for Vitamin D Deficiency, Test Those at High Risk
Posted by Ann A. on May 24, 2012 at 6:40pm 3 Comments 1 Like
http://www.sciencedaily.com/releases/2012/02/120222204235.htm
Even children who are apparently healthy can be vitamin D deficient and…
Continue Rash on parts of my body
Posted by Becca2673 on May 24, 2012 at 1:42pm 1 Comment 0 Likes
Hello all....experiencing a rash (patches) on parts of my body. They burn...not necessarily hurt and a little itchy. I have also discovered I have sores on my scalp. Has anyone experienced any of this before? Took a oatmeal bath last night…
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Lupus is more widespread than most people realize. Research shows most Americans know little or nothing about lupus and its devastating impact.
In an effort to raise awareness of lupus and show support for the estimated 1.5 million Americans and at least five million people worldwide affected by the disease, we ask that you tell your story and help change lives. Join the more than 1,700 people who have shared their lupus stories on Lupus Voices Across America™, an interactive online community designed for supporters and people with lupus to educate others about this life-changing disease.
Help others understand what lupus is, how it affects you, and what it’s like to live with the disease. Add your voice today!
PS. Lupus Awareness Month isn’t over yet! Listen to our latest podcast about Organ Involvement in Lupus with Dr. Diane Kamen and see how you can still get involved at www.lupus.org/awareness.
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May is Lupus Awareness Month! Join the Lupus Foundation of America and BAND TOGETHER FOR LUPUS AWARENESS to improve the public's understanding of lupus and show support for those who suffer from it. |
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Learn about Lupus Every day during the month of May, we will share a fact about lupus on our Web site and social media outlets that you can share online with your family and friends. In addition, be sure to listen to weekly audio podcasts from leading lupus physicians. This week's podcast about Understanding Lupus will feature Dr. Joan Merrill. Listen now! |
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Participate Participate in one of the many Lupus Awareness Month activities hosted by the Lupus Foundation of America's network of chapters and affiliates around the country. Click here to see the full list. |
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Tell the Story Check out our Awareness Kit for fliers, Facebook and Twitter images, and many more tools that you can use to tell the story about lupus during the month of May. |
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Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!
Forum
Relationships
Started by Cannabearrx in General 10 hours ago. 0 Replies 0 Likes
Does anyone have any advice on how to help my fiance cope with my illness, lupus. I never have enough energy to do much except exist. And I know it gets to him, but I can't get him to understand that this is the way it is. so it puts a huge strain…Continue
Tags: coping, husband, fiance, relationship
Holidays
Started by Angel312 in General 12 hours ago. 0 Replies 0 Likes
Hello all. I just wanted to first of all say Happy Memorial Day to you and if you have lost someonethat fell victim to the fighting and wars, I am so sorry. Have fun and don't forget those fallen soldiers. I guess I don't have to tell anyone not…Continue
Managing Raynaud's Phenomenon
Started by erynnraven in General 16 hours ago. 0 Replies 1 Like
Hello,A couple of months after I was diagnosed with SLE I was also diagnosed with Raynaud's Phenomenon. At first it was only happening when I was going outdoors on a cold day and I forgot to put on my mittens. I was hoping that with the weather…Continue
Dead sea salt for Psoriasis patients.
Started by Tez_20 in General yesterday. 0 Replies 0 Likes
I've neen chatting with a friend tonight of my hubby's, who once had psoriasis bad and he went into Dead sea salt water and it cured it and his friend had a bad flare of it in his head and was advised to buy,"Dead Sea salts" and apply it in a bath…Continue
Tags: Tez_20
mail orders
Started by lia nuriddin in General. Last reply by poobie 2 hours ago. 14 Replies 0 Likes
I was wondering if anyone has ever used the mail system to receive their medications and has ever used the system to receive their meds from another country through the mail(sorry if confused anyone.Continue
Tags: prescriptions, orders, mail
Need advice???
Started by haitianbarbie88 in General. Last reply by Beverly L. 23 hours ago. 16 Replies 0 Likes
I will be getting married next month and moving to ga by the end of summer. I know I've read on here about some of the members moving to another state. How do I go about this? I just started getting comfortable with my docs here in ny. Do I find a…Continue
Latest Activity
ModeratorTez_20 left a comment for Kim
"Hello Kim,
I bet you are scared, i was only diagnosed 5yrs ago but was actually born with it, i…"
Ann A. replied to Ann A.'s discussion Discontinuing Pain Medication - What Can I Expect"Dear Nicole,
Over the past month there were days when the pain went up so high that it was take the…"
Top Content
| 1 |
Need advice???Posted by haitianbarbie88 on May 23, 2012 |
| 2 |
mail ordersPosted by lia nuriddin on May 24, 2012 |
| 3 |
Me TimePosted by Bethany Wright on May 20, 2012 |
| 4 |
soft peoplePosted by janice on May 22, 2012 |
| 5 |
Questions to ask the rheumatologist?Posted by Faye on May 22, 2012 |
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New member says:
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Life With Lupus - Online Support Group
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Life With Lupus - Online Support Group
New member says:
Thank you, this must be one of the most difficult things our family has had to endure. We are all so scared and confused. Most of the time his think doesn’t seem rational or logical. I know its his Lupus because his brain and body are weak and tired. I love him so very much and I feel so helpless and alone. My family and friends don’t really understand. I appreciate this group and hope to help as well as be strengthened by it. I am here to live (with this challenge) love(those who need it) and learn (from all those I Can). I need you all. Please help..
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