Life With Lupus - Online Support Group

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If your family has been affected by Lupus, consider Life with Lupus Support your second home.


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What is Lupus?

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.


CNS dysfunction

Started by RNmom in Emotional Support. Last reply by hopeful 1 hour ago. 2 Replies

So, long story short...the only DX I have is Undifferentiated Connective Tissue Disease. My ANA last check 6-8 months ago was still neg. I have been positive for APL antibodies X3 and have MRI confirmed joint inflammation as well, making treatment…Continue

Question about vitamins and such.

Started by Minxie40 in General. Last reply by tK 15 hours ago. 5 Replies

Has anyone ever experienced an increase in your pain after you have taken vitamins and other immune boosting products?  I noticed that when I take such things my pain level increases.  When I stop taking them, my pain level decreases.  It even…Continue

Plaquenil vs generic

Started by Sophia in General. Last reply by freightliner 9 minutes ago. 14 Replies

I am going to start plaquenil 200 mg twice a day. Here are some questions I have. 1 Are there some different between Plaqurnil and generic version Hydroxychloroquine? 2. Does anyone breasts feeding while having Plaqurnil ? 3.where we get our…Continue

staying in shape

Started by Ray in General. Last reply by reddog yesterday. 5 Replies

Ive noticed that working out helps with everything. I work out everyday and i haven't took any medication for 7 years. As long as you eat right and stay tight and take vitamins such as vitamin D cause we cant be in the sun and calcium for our bones…Continue

Missing Doctor's Appointments

Started by Trying to be positive in General. Last reply by hopeful on Sunday. 2 Replies

Good morning!I live in Toronto, Ontario, Canada so I realize that your situations might be a little different, but here goes. How do you handle being forced to miss an appointment with a specialist at the last minute due to a flare? Our GP is very…Continue

Building a Solid Relationship with Your Doctor

Started by BaltimoreBaby in Physician Recommendations (Positive Review Only) on Saturday. 0 Replies

I thought to share this article from Arthritis Today as I appreciated the thoughtful reminder that we are not helpless in our care, but equal partners with our doctors. Let's build the most solid relationships together that we can!…Continue

Blog Posts


Posted by janelle on March 31, 2015 at 5:39pm 0 Comments

Im having alot of bone pain. Like deep bone pain. My bwrk came back normal. He said to get back on plaquinil why am i having so many issues but everything is showing nothing? I get very cold too with fever and cold feet and nose anyone elses bwrk… Continue

Latest Activity

freightliner replied to Sophia's discussion Plaquenil vs generic
"Hi molly I wouldn't worry about the safety of Target meds.  I get mine from Sams Club.  I love thre pharmacists there.  If a doc prescribes something for me that has an ingredient that I am allergic too (and there;s many of…"
9 minutes ago
hopeful replied to RNmom's discussion CNS dysfunction
"I would think a good neurologist might be able to help, I have some of the same issues with the transient speech, weakness and memory I should get it checked out but don't, thats a whole other story.  You should try to see a neurologist, I…"
1 hour ago
RNmom replied to RNmom's discussion CNS dysfunction
"I forgot to mention that I do have other SLE features; photosensitivity, malar rash, pericardic pain (they assumed it was mitral valve prolapse for since starting MTX, it is gone), hair loss, weight loss, intermittent fevers…"
8 hours ago
RNmom posted a discussion

CNS dysfunction

So, long story short...the only DX I have is Undifferentiated Connective Tissue Disease. My ANA last check 6-8 months ago was still neg. I have been positive for APL antibodies X3 and have MRI confirmed joint inflammation as well, making treatment FINALLY (after a year of being in a downward spiral) possible. I've been trying to tell my rheumy for months that I have muscle weakness, transient speech problems, memory issues...etc.. for months, but she said she thought the weakness was due to…See More
8 hours ago
Dottie S left a comment for healthyfitbecker
9 hours ago
Dottie S left a comment for paris nelson
9 hours ago
jennifer replied to Kittenchops's discussion Horrible, mean Pain management doc
"Feeling similar.  My Dr.  recently made comments making me question my sanity.   Thanks a lot Doc.  Just cuz you can't explain why I have terrible pain in my back does not mean that "anxiety" is the source.  I…"
9 hours ago
Pamk1953 replied to Pamk1953's discussion Blurry vision
"Hi Janet (reddog) How are you doing? I hope you are doing okay. pam "
9 hours ago
jennifer is now friends with Talencia, lynn4545 and Auburnm
10 hours ago
jennifer updated their profile
10 hours ago
Talencia left a comment for healthyfitbecker
"Welcome to Life with Lupus, Becker!  Please feel free to introduce yourself in our discussion forums and help us get to know you better!  You'll find lots of resources and helpful information in the discussion forums, as well as…"
10 hours ago
Talencia left a comment for jennifer
"Howdy Jennifer, I'm glad you've joined us!  You'll find a lot of information in the discussions, which are also a great place for questions.  The blogs provide an excellent source of support as well!  Feel free to send…"
10 hours ago
molly replied to Sophia's discussion Plaquenil vs generic
"I get mine from Target pharmcy .generic I don't know if target pharmacy is safe or not butbit is cheaper."
11 hours ago

Auburnm left a comment for healthyfitbecker
"Welcome healthyfitbecker to a great patient support site!  Please look around, I am sure you will find helpful information.  I am glad you joined and I look forward to knowing you.  Hugs!!"
11 hours ago

Auburnm left a comment for paris nelson
"Welcome paris to the best patient support site on the web!  This is a great place for information and support.  I am glad you joined and I am sending you hugs!!!"
11 hours ago
Profile Iconhealthyfitbecker, paris nelson and jennifer joined Life With Lupus - Online Support Group
11 hours ago

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